Hi all! I was just (finally!) diagnosed with dysautonomia about a month ago after months of testing. While I fainted during the tilt table test (only after nitroglycerin administration), the electrophysiologist said I don’t have POTS, but I do have “a form of dysautonomia”. I think main reasoning for no POTS is that heart rate didn’t increase by 30 BPM during standing portion (I think it was like 24 BPM increase). Anyway, upping my salt in take (thank you Salt Stick pills and Drip Drop hydration packets!) has helped with blood pressure drops and low heart rate drops... BUT my question is: do I need to push to figure out what form of dysautonomia I have? How important is knowing the actual root? So far he’s just having me start a low dose of Paxil (SSRI) and lunesta at night to help with the insomnia. AND, with that, should I try to find a different doctor who actually knows more about dysautonomia in general? This doc at least knew what it was and was able to give me a name, but he also just couldn’t give me a bunch of answers...
Just DX ...
in Dysautonomia Discussion
Posted
Hi all! I was just (finally!) diagnosed with dysautonomia about a month ago after months of testing. While I fainted during the tilt table test (only after nitroglycerin administration), the electrophysiologist said I don’t have POTS, but I do have “a form of dysautonomia”. I think main reasoning for no POTS is that heart rate didn’t increase by 30 BPM during standing portion (I think it was like 24 BPM increase). Anyway, upping my salt in take (thank you Salt Stick pills and Drip Drop hydration packets!) has helped with blood pressure drops and low heart rate drops... BUT my question is: do I need to push to figure out what form of dysautonomia I have? How important is knowing the actual root? So far he’s just having me start a low dose of Paxil (SSRI) and lunesta at night to help with the insomnia. AND, with that, should I try to find a different doctor who actually knows more about dysautonomia in general? This doc at least knew what it was and was able to give me a name, but he also just couldn’t give me a bunch of answers...