I'd like to ask how old you were when your Drs started giving you standing orders for IV saline replacement. My daughter is 14 and has been diagnosed for 3 years. Since she has undergone hormonal changes and the levels have increased she has become much worse. Suffering pre-syncope and not getting to school much despite being a serious soccer player. I would like to ask her specialist whether we could try this. She has POTS with hypotension and gets very nauseous light headed, blurred vision, chronic fatigue, brain fog etc. Since last December she has been miserable where as prior to that she was managing school and sport with midodrine and ondansetron for nausea and melatonin for sleeping. Now her sleeping is poor as well. Of course I am worried about her schooling and to see her happy again. It breaks my heart. Also has anyone had a portacath inserted to have IV saline via battery operated pump in a backpack that runs continuously?
PS She started the mini pill end of December and we are still waiting for the 3 months to come up for it to truly be effective. Any comments on the effectiveness of that would be appreciated.
