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About tonimackerz

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  1. Jojo79, that's really awful, I kind of understand what you mean and how awful the NHS is with this condition. Half the doctors I've seen don't actually think I have this condition as they don't believe it's an actual condition. I feel like I'm making things up half the time but I **** well know I'm not. Could I ask, did you just pay for the initial consultation and then went via NHS or did you end up having to pay for it all privately? It's a disgrace that we have to pay out when we have a system in place that's supposed to help us which is paid for in our taxes. But without diagnosis, l
  2. Hi all, thanks for your replies, wasn't aware I had any response until now. I appreciate your words of wisdom, unfortunately where I live (England) there aren't a lot of specialists and is not a widely recognised condition. Yogini, you were given Paxil, did you just ask your doctor about it or did they suggest it?
  3. I am 21 and was diagnosed with having Dysautonomia last year after suffering with symptoms for 6/7 years without any help. I have tried Amitriptyline, as suggested by the doctor, but it doesn't seem to have done much to help me. They cannot give me a more specialised diagnosis of the Dysautonomias, just that I have one. My symptoms include: insomnia, gastric issues (nausea, bloating, reflux), breathlessness on exercise, headaches. It's affecting my everyday life and am finding it very difficult to cope with this. I am really at a loss of what to do, nobody seems to be able to help. Has an
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