tonimackerz

Jojo79, that's really awful, I kind of understand what you mean and how awful the NHS is with this condition. Half the doctors I've seen don't actually think I have this condition as they don't believe it's an actual condition. I feel like I'm making things up half the time but I **** well know I'm not. Could I ask, did you just pay for the initial consultation and then went via NHS or did you end up having to pay for it all privately? It's a disgrace that we have to pay out when we have a system in place that's supposed to help us which is paid for in our taxes. But without diagnosis, life is miserable. Would be appreciative if you could keep me posted on how your treatment goes. Best of luck

Hi all, thanks for your replies, wasn't aware I had any response until now. I appreciate your words of wisdom, unfortunately where I live (England) there aren't a lot of specialists and is not a widely recognised condition. Yogini, you were given Paxil, did you just ask your doctor about it or did they suggest it?

I am 21 and was diagnosed with having Dysautonomia last year after suffering with symptoms for 6/7 years without any help. I have tried Amitriptyline, as suggested by the doctor, but it doesn't seem to have done much to help me. They cannot give me a more specialised diagnosis of the Dysautonomias, just that I have one. My symptoms include: insomnia, gastric issues (nausea, bloating, reflux), breathlessness on exercise, headaches. It's affecting my everyday life and am finding it very difficult to cope with this. I am really at a loss of what to do, nobody seems to be able to help. Has anyone else been struggling with treatment/proper diagnosis or have any recommendations/ideas of what I can do to help get this under control?