dizzyape

I live in Nashville and have my appointment with the Autonomic Clinic in October. I want to know how you manage your dizziness and dreamlike sensation (or rush, as I call it.) I have found these symptoms to be debilitating and so frequent I am scared to go out. I am surprising my husband with a trip to Vegas next month for his birthday and I'm terrified that I will be feeling awful the whole time and end up in the ER. Please any advice on how to manage symptoms is greatly appreciated!

My Dys symptoms started with my stomach with gastroparesis like symptoms. I then would occasionally get dizzy spells and that disconnect/dreamlike sensation. How does everyone deal with this? Have you found anything that helps it to improve? I hate when it happens when I'm out, it makes me not want to leave the house. It's such a scary sensation. For two years now doctors have been telling me I just have anxiety. I'm glad to finally be getting answers but I would love to find relief from these symptoms!!!

Thank you so much. This is encouraging. It seems that people talk about flare ups or episodes. I am hoping to get through this bout of symptoms and start feeling better. One of the most annoying symptoms to me is the disconnect feeling or dreamlike state I get along with dizziness. I'm scared to have the tilt test because I've read some horror stories about that. In your experience could it be best to have the MRI before doing the tilt. I happen to live in Nashville so I am trying to get into the Vanderbilt Dysautonomia clinic here. In the meantime I have been seeing my EP. Thanks!!

Hello All, I am still awaiting my tilt test to diagnose me however my doctor is convinced I have Dysautonomia. I had SVT since I was 11. I had three heart ablations with my last being when I was 26 ( I am now 41.) Over the past couple years I started to have symptoms very similar to gastroparesis. I have had several flare ups. I recently had a hysterectomy because of heavy bleeding (which upon reading could also be from dysautonomia.) While I was in recovery I went into tachycardia. I was put on a beta blocker which made me feel terrible. I have now weaned off of it but I am having horrible dizzy spells, vertigo, feeling lightheaded and sometimes these weird spells of feeling like I am in a dreamlike state. I am so over feeling awful. Are the gastroparesis symptoms and dizziness normal with dysautonomia? I'm terrified.