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About dizzyape

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  1. I have my TTT and other autonomic testing tomorrow at Vanderbilt. I'm super worried as I've never passed out before. I'm also worried about the fluctuations in bp and heart rate. I am working an event on Sunday and will be on my feet for 10 hours. Does the TTT wipe you out for a few days? Just wondering what to expect. Thank you!
  2. Quick question: I find myself getting these awful dizzy spells and when I take my blood pressure it's normal. Do any of you get dizziness and have a normal bp? I thought the dizziness comes from a drop in bp. Thanks!
  3. Yes and it came back negative although my dr did want me to follow up with a Rheumatologist to rule out anything. I'm calling on Monday to pursue that .
  4. Today I have had a visual migraine, headache, dizziness and extreme fatigue. Now starting to have some of my gastroparesis symptoms. So needless to say, it's been a rough day. I have had so many symptoms off and on for years and after being told "it's just anxiety" I finally got a little clarity. A new doctor finally put a name to all of these crazy symptoms and said he's almost certain this is what I have. My concern is what if it's not a benign form of Dysautonomia where I can just deal with symptoms as they come, what if it's something worse? Does anyone have this many symptoms? - fatigue, gastroparesis, headaches, dizziness, vertigo, chills, ringing in my ears, tachycardia, feeling like I'm in a dreamlike state, feel like I'm walking on a slant..... I keep reading POTS symptoms and there don't seem to be this many. I'm hoping it is not a worse form of Dys or something else. Just looking for your experiences. Thank you!
  5. Relief from dizziness and vertigo?

    Is it life threatening or just really annoying?
  6. Relief from dizziness and vertigo?

    Interesting I did a little research and seem to have almost all of those symptoms. I will request an MRI. Is there anything that relieves your symptoms I sure don't want to have surgrey if I do have it.
  7. Relief from dizziness and vertigo?

    I went for a walk this morning and felt like I was walking sideways which happens to me once and awhile. Yesterday I did some floor exercise and yoga poses so my head was hanging. Especially during downward dog and side planks.
  8. I had some dizziness and vertigo come on suddenly today. My BP was 129/84 and my pulse was 83. Not sure what brought it on or how to get relief. I started drinking a gatorade and I'm trying to relax but it's such an awful feeling. I would appreciate any feedback or advice on relief of symptoms
  9. I took a weight lifting class this morning and now hours later my heart has started having pac's and being very tachy. It's driving me crazy and I would love to get it back to normal. I"m thinking I need to stick with walking. Any tips on bringing your heart rate down? I'm not on any meds.
  10. I took a chisel and sculpt weight lifting class today. I felt fine after the class but now 7 hours later my heart is very tachy. Have a high resting heart rate between 104-114. I also just feel kind of crappy. I'm not sure if it's from the class or something else. I thought because it wasn't aerobic that it wouldn't mess with my heart but it was a little intense with lots of squats, lunges etc with weights. I have not officially been diagnosed. I have an appt. at the autonomic clinic at Vanderbilt in October. I have been on Metoprolol before but currently not taking any meds. Anyone experience this and what do you do to get your resting heartrate back to normal?
  11. My blood pressure normally runs on the lower side 94/72 -118/74. I have recently upped my salt per the doctors orders. I have started exercising more and drinking a lot of water. I just bought a home blood pressure cuff and my blood pressure has been between 120/74-125/80. Today I took my bp while standing and it was 139/83! Is it normal that it goes up when standing, I would think it would drop. I am still having my dizziness and symptoms even though my bp is higher than normal. Just looking for some feedback about this. Thanks!
  12. I have seen a few people's conversations about a POTS workout. I found this link and thought it could be helpful. Although it's from a children's hospital it seems it's for adults. http://www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf
  13. Recently diagnosed with POTS / On Florinef

    Hello, thank you for sharing! I am going through the same symptoms but I have not been officially diagnosed yet. I have an appointment in the autonomic clinic in October. I find I get these rushes of being lightheaded that is paired with that sensation like I'm in a dream. Then my anxiety kicks in and I just sit there and panic about what is wrong with me and worry I'm going to faint. I also get gastroparesis symptoms, tachycardia, a rush of pressure to my head and the feeling that my ear is filling up and can't hear well, fatigue, etc etc. It's so frustrating because I see all these people going through there day and I just want to feel normal like them. Hearing that I'm not the only one with these symptoms does help. Until recently I had never even heard of dysautonomia and doctors kept telling me I just had anxiety.
  14. I live in Nashville and have my appointment with the Autonomic Clinic in October. I want to know how you manage your dizziness and dreamlike sensation (or rush, as I call it.) I have found these symptoms to be debilitating and so frequent I am scared to go out. I am surprising my husband with a trip to Vegas next month for his birthday and I'm terrified that I will be feeling awful the whole time and end up in the ER. Please any advice on how to manage symptoms is greatly appreciated!
  15. My Dys symptoms started with my stomach with gastroparesis like symptoms. I then would occasionally get dizzy spells and that disconnect/dreamlike sensation. How does everyone deal with this? Have you found anything that helps it to improve? I hate when it happens when I'm out, it makes me not want to leave the house. It's such a scary sensation. For two years now doctors have been telling me I just have anxiety. I'm glad to finally be getting answers but I would love to find relief from these symptoms!!!