lindaf

Jessica, your baby is absolutely beautiful! So is Ethan. Am so glad to hear you are doing so well and had a relatively easy delivery. Keep up the good work and rest as often as you can. Congratulations!!!

Dear Jan, I will pray for both you and Jeff everyday and whenever you need help, please feel free to email me and I will give you my phone number. I would be willing to be there for you to talk to 24/7. There are so many new chemotherapy drugs available and ones that have been most successful. I can only imagine what you are going through and know how hard it is to be strong when someone you love so much is so sick. I have been there and only wished it could have been me instead of my husband. I, too was so scared and felt so alone. All turned out well, but the time it was going on was the longest in my life. I, too, am a cancer survivor. You both are in my prayers and I will ask my friends and family to pray also. Love to both of you, Linda

Jessica, enjoyed seeing your pictures. Ethan is a beautiful little boy and I am sure your new little one will be just as beautiful. I hope you are feeling well at this point. The last few weeks are so hard to wait out. Linda

I think that this is a terrific idea and will help all of you find even more doctors in the area in which you live. You may be able to meet if you are close by and form some life long friendships. It would also help all of you to have a friend nearby who understands your illness. Best of luck on this endeavor.

Miriam, You most certainly had a guardian angel with you and your husband last Memorial Day. Sometimes there is no explaining why we do what we do and the timing. You are constantly improving and have come so far from that horrible experience. Thank you for sharing your story. Linda

Ernie, This is such a wonderful new beginning for you and I couldn't be happier! Enjoy everday with your new freedom and I am sure you will meet lots of loveable people who will only enrich your life. Linda

Mary, I was so happy to hear how well Marissa did dancing. It must have been so joyous to see her so happy and win! I hope your migraine goes away asap. You are both in my prayers. Linda

Danelle, Your son sounds very special. How hard it must be to watch your child being so ill and not being able to have an answer. I will pray for all of you. Linda

I don't want to look good, I want to FEEL good

Corina

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morgan, I know how sick all of you feel on the inside. I can only imagine how depressing this horrible illness is. My niece is more cynic about the doctors than anything else. One day they tell her she will get better and the next they tell her she will probably never improve.She is such a beautiful person inside and out. It is hard to see a young woman with a type a personality so debilitated. She has her moments, especially now with a new baby. It must be such a frightening feeling wondering how you are going to care for an infant when you can't take care of yourself. Sometimes when I see her, she does look good and you can forget for a few minutes how sick she really is. After a half hour, her color gets sallow and I know she is exhausted just from talking for a little bit. Believe me, when I leave, I do alot of tear shedding on my way home. She never complains and only a few times to me has she revealed how scared she really is. My heart breaks for all of you and I pray every night that they will find a cure for all of you. I had never heard of POTS until September. I pray every night that all of you will wake up the next morning and be "normal" and get your lives back. Linda

How did you make out at the doctor's today? Were you able to control the nausea? I sure hope so, because there is nothing worse. Keep us posted.

Steph, I hope you have a speedy recovery from your surgery. My prayers are with you. linda

I think that when someone says you look good, they are trying to be nice and trying to beef up your spirits. When I tell my niece she looks good, I can tell she is very encouraged and feels that maybe she is making headway in this battle against POTS. I know how sick she is and think of her constantly. I pray that all of you will get better. I would never think for a minute that someone isn't sick because of the way they look. When I see color in her lips and cheeks, I am encouraged. More, when I see light in her eyes, I know she is having a good day. It is almost impossible to stay upbeat when your body is so ill. I would hope that the people that tell you that you look good are trying to lift your spirits.

Mary, I am so sorry for what you and your daughter are going through. She is so young to have all of these serious health issues. My prayers are with you and your daughter. I wish we could get more compassion out of some of these doctors. If they suffered only a minute amount that all of you are suffering, they would be on call 24/7 and maybe find more answers. Please let us know how your daughter is doing. Linda

Julie, I think it would be a good idea for your brother to accompany your ex-sister-in-law to the pediatrician and not leave that office until he is satisfied. This poor little guy does seem to be way over medicated and on some serious drugs that can have dire consequences. He is obviously malnurished on top of the way he is feeling. Maybe even your parents could accompany them to the pediatrician. Keep us posted. Linda

linda joy, I think you did too much. Maybe you still need the original dose of you medication. Don't get discouraged. A healthy person without pots would be tired and feel off doing what you did in one day. Try to take it easier and don't give up. If you did all of that, you must be making headway. Stay positive. Linda

Ernie, I am so happy for you. You will have mobility again and that will surely lift your spirits. Just great news.

Morgan, my sister and I both had horrible groin pains, and it turned out to be pressure from the sciatica. My son just had an MRI and it didn't show anything, but since he as trouble with the sicatica, they contribute the groin pain to that. I could hardly walk straight while I had the pain. Keep looking for an answer. Will be thinking of you. Linda

Dear Linda, Way to go-you probably helped many others besides yourself. Never give up looking for answers. Linda

Dear Katherine, so glad to hear you are feeling a little better. Keep us posted. Linda

Dear Julia, So glad that Mike is okay. He has to see his PCP because alot doesn't show up the first 24 hours. It was a hard lesson, but He is OK. Thanks for the update. Linda

Dear Julie, I can't imagine how you felt when you got that phone call. I am so glad he is okay. Please keep us informed. Linda

Patti, I am sure Chrissy will do very well. She will meet best friends there and they will be her support system. She has to be honest with her friends so that they know how to help her if she needs it. Most will be very supportive, and Mom and Dad are close by if needed. She should always have food and drinks in her room in case she is not up to going to the cafeteria. Good luck and God Bless. Linda

Dear LindaJoy, you did the right thing by quitting and not giving up your own principles. Don't listen to the gossip. You will find freelance jobs out there and will be so much more content without sacrificing who you really are. Linda

Dear Emily, Just remember you are feeling better and improving. Don't get discouraged. Keep resting and when able, do things you enjoy to get your mind off of your illness. Soemtimes a phone call (even if only for a few minutes) from a good friend wil take your mind off of your crummy feeling. Try to stay positive, and rest. Linda

Dear Morgan, I also had horrible groin pain and myob/gyn sent me to a surgeon. He told me it was from my sciatica pinching a nerve that was causing the pain. My sister had the same problem and hers is a disc problem in her lower spine. Find another orthopedic doctor or even a chiropractor. That helped me and the pain went away. Linda