dancer65

Have you thought about talking to a Personal Trainer ? They would assess your fitness level at this time and work on a program to suit your capability and goals. One who specialises in rehabilitation would be good! A trainer would help you with technique as well so you gain maximum benefits. Your local gym should be able to suggest someone or one of the Exercise Associations have a list of qualified Trainers. Just a thought.

What is your fitness level at the moment?

I am sure my underlying problems are autoimmune, I have a number of autoimmune diseases which are herditory which has steadily progressed as I have aged! Oh the joy!

I just wondered has anyone tried Sterol to address their auto immune problems and if so how did you react.

Thanking you in advance

Thanks for the link interesting reading!

We make my own with oranges, limes, pink salt and coconut water I don't mind the sharpness but you could add honey to sweeten. Most of the time I juice them but you can use a blender as well. I know it is a bit of an effort but when I am not good my husband makes it.

Thank you for your replies No I haven't done anything out of the ordinary to cause this.

I have read about magnesium deficiency causing all sorts of symptons including headaches, muscle pain. I do make electrolyte drinks every day because of the water intake diluting the minerals so maybe I will try taking a supplement as well. I am really having a bad week, I had been feeling a bit better after my Dr doubled the Florinef dose, I know you all understand the frustration a downturn brings!

Are we allowed to post links for info ?

I have so much to learn so thank you for your imput

mine is 4

I have had migraines since I was 20 now almost 50! I seem to have bouts of them, more so when I push myself to hard and get tired.

Hi every one

I am fairly new here and I have found this forum so helpful and comforting, so a big thank you to you all for sharing ! it is nice to know that some of the things I am experiencing are not in my head! It has taken many years to get diagnosed and I was beginning to think I was going mad!

I have experience shoulder pain from between my shoulder blades up to the base of my skull for a long time which often progresses into a migraine, however this last week I keep being woken up with excruciating pain in my shoulders (deltoid muscle area) and across my collar bone. I can only describe it as though someone has put my shoulders in a vice. I have to get out of bed and move around for the pain to subside which takes about half an hour. I have over the last six months noticed considerable loss in arm strength, pins and needles in my arms and the veins pop in my hands which I know is common in POTS but this shoulder pain is new.

Can anyone relate to this?

Thank you in advance

I have always had dry sensitive skin and it seems to be worse since I went downhill 6 months ago, not sure if the Florinef has made it worse.

I think this is a wonderful post for new members like myself, I am just getting to grips with my diagnosis and accepting the lifestyle changes I am making to cope what that means for the future!

I am only just beginning to learn not to apologise for everything I can no longer do!

Accept what doesn't get done today will be done when I have a good day.

On a good day giving my husband quality time , he deserves it.

I had mild symptoms after developing hereditary alopecia universalis at the age of 12 along with excema, asthma, IBS. After glandular fever at 18 I had CFS and I have continued to progressively have fewer times of feeling well since my hysterectomy at age 46.

Sorry to hear you son is so poorly, hope he gets better soon, horrible seeing your child suffer.

I went gf free 2 years ago when I was really ill and they couldn't fit me to any positive diagnosis and I was told we will see how this developes, they thought it might be Lupus. Within three weeks a lot of my symptoms became milder and the energy levels improved. A year ago we moved into a house that needed completely renovating and the diet slipped, big mistake on my behalf, I became really ill again five months ago and I could hardly get out of bed for two of them. The florinef has helped me get to a point that I have enough energy to tackle the preparation this diet requires and I am on my third week.

I am seeing a slow improvement I am back to work and I am starting to rebuild my exercise regime, my cardio really needs work but I am taking baby steps as I have been exercise intolerant, not easy as exercise is my job, my teaching skills have been tested to the max!

Yes we live in a rural area, always buy our salt it in bulk!

Salad, fish, fruit, veg, gluten and sugar free products, exciting or maybe not! We use pink salt to cook and in the bath seems to help with aches and pains

Good luck on Friday

Thank you both for your replies, don't know why I didn't think of that, my brain just doesn't seem to function at the moment!

I have been trying to find out if you can take Ginkgo whilst on Florinef, so far I have drawn a blank, I forgot to ask my Dr about it, Can any one help?

Thanks!

That my husband is more supportive than I could ever have imagined

Thank you for the warm welcomes! I am already finding the forum helpful and a comfort to read others members experiences.