Skeeter

Hi, I will be 51 in a couple of weeks and mine also has gotten worse with age, Dr. Grubb recommended a couple of years ago taking prempro. I am on a low dose and they plan on keeping me on it for a few more years only to try and help my horomones stablize so the Pots symptons and all that goes with it do not get worse. It has helped some I am sure. Just really don't like having more problems as I get older. All you can do is try and make the best of each day...somedays all I want to do is sleep. That is the one thing that is the hardest right now i can't imagine what it would feel like to have energy again. Sorry I couldn't right that it gets better with age. I am like the others can't imagine why someone would say that. Hang in there...Becki

Hi Sallyann, I had the GI pacer done at St. Vincent hospital in Indianapolis, Dr. Thomas Nowak is the GI Dr. that specializes in motility problems. Yes I have also have other motility problems with my colon. I had severe gastropresis, had a difficult time keeping anythin down and lost quite abit of weight. I do eat better on most days, smaller quanitities, but at least it stays down. I guess the part that I have unsure about is that people just don't understand because it is not common so don't really say too much. I lalso have a cardiac pacemaker which I have had for almost 8 years. Guess you could say I am bionic. (HA HA) Guess I just want to be normal whatever that is! Have you had a problem for along time? What medicines have they tried? Hope you have a good day. Becki

Hi, I had a GI pacemaker put in May of 2004. It has helped alot with the vomiting and nausea, sad thing is it is not very common at all. Only people that are really close to me know that I have it. Going to different Drs. since then when I have to tell someone there like you have what. Why? What does it do? They have never heard of such a thing. We tried all the meds that could possibly help first either I got sick or they just didn't help. I still have mixed feelings on it.. Can't change it now. Feel free to post back and I can even give you my email address. I read the posts alot just haven't been very involved. My daughter just left for college a few days ago. Missing her big time! Take Care, Becki

I am knew to this forum. Try to make this brief and give a little history, I have had pots for at least the last 10 years and probably longer. I had an ablation in 1998 and a pacemaker Sept. of 98. Have been on alot of different meds. and a lot of different problems with this along the way. May of last year I had a GI pacemaker implanted because of sever motility problems was constantly nauseous and vomiting. The pacer has helped with those issues, but since Christmas time with the last three weeks being the worse I have pretty much had chronic diarrhea and know one is sure why. Cultures are normal, potassium is low, and have been Iv'd twice. I am so wore out and it is not in my nature to give up! All I want to do is sleep. I feel like I am useless to my husband and kids and everything is just so difficult. I have tried the usual meds. not much of anything helps. If anyone has any advice or has been through anything like this I sure would appreciate hearing from anyone. I have lingered and read posts but not really been up to responding. I only heard about this site a month ago, I think. Anyhow thanks in advance. Becki