lewis

I would like to know this for sure. I have noticed though that when I have pain I generally have blood pooling time. Compression socks take the pain away from my feet

Talked to my immunologist, he said my complement findings were clinically insignificant because all my other inflammation tests were normal.

It's a similar feeling but different for me. Its more of a woozy feeling than a dizzy feeling..

Wow this really inspires me. I love to run but the reflux keeps me from running. I have times where I feel my dysautonomia is leaving me alone but the reflux is always there. My goal was to make it the top of one the highest peaks in Utah this summer with my 8 yr old and 10 yr old kids. 14 mile hike and we made it!

My c3 was low. They only did individual c3 and c4. I know steroids would help but like you said it's a temporary fix. All my other inflammation and autoimmune markers are normal. I wonder if taking a drug prescribed for autoimmune conditions would be helpful?

I been getting this lately but didn't know how to even describe the feeling. It's like being on an elevator though. Sure would like to know what is as well

I quit a year ago but got some this weekend by accident from a spiked drink. I knew something was up cause I suddenly felt the best I had in a long time.

I had done testing done from an immunology and my complete complement levels were elevated. This is about the only thing have found that has been out of range besides low c3. Do any of you know of anything besides steroids that I could ask my doctor for to help decrease this?

RLA is a much better form of ALA. The article mentions acetyl l.carnitine and b complex, both increased my nerve pain

Cymbalta made me feel the worse I have felt in my life. Exaggerated every problem and severe never pain. My doc said to stick it out. I told him very bad words.

Mine usually are do to something I ate. Not sure if it has to do with the nutrients or the acid it creates. Spinach salad for example makes my tremors worse. Junk food however makes me have none. Hard to eat good with this. Also I can't take any multi vitamins. Mine has also got better after I found out my iron was low and I stayed eating more red meat.

My chesy just gets heavy like I have to think about breathing. I bet a cpap or similar would help.

Ya, just didn't know who would handle it, thanks for the info.

Waiting on my small.fiber results

Anyone had there co2 levels tested? Mine are always elevated. How can I bring them down? My doctor keeps asking if I have sleep apnea. I don't, just the heavy breathing hyperventilating stuff. I really think it would benefit me if my levels were lower. I would love to try a cpap or bipap but don't know how I could get one without a sleep study and I would put money on not having symptoms the night of the study.

Oh ya and crazy tremors on it. My docs have said paxil had been proven to help. Question for you jerry, are you on any beta blockers? I am on propranolol and even though I still looking for something better, it has really helped everything.

Propranolol made me feel just...blah. A boneless lump on the couch.

Metoprolol xl (toprol) worked much better for me. I can't remember which doctor said this to me, but I'm pretty sure it was one of the more competent ones. When I mentioned that propranolol made me feel awful but metoprolol was ok, they said they weren't surprised at all. Something to do with propranolol being non-cardiospecific where metoprolol is, and how both drugs cross the BBB, but propranolol does it at a higher concentration.

Thanks for this info!

I tried it for night shift work, stopped it cause of the head aches

Tried gluten free? I tested negative for gluten intolerance but am alot worse if I get any

I know exactly what your are feeling. I experience this and have a blood sugar tester and my blood sugar is normal during episodes. However eating a balance of protein and carbs does help. When I had my ttt I became extremely hypoglycemic before I thought I was going to pass out. Now I use it as a sign that it's time to drink water and more salt

I don't know about beta blockers but changes in libido are not uncommon with dysautonomia.

Thanks. Wink wink. Kidding kidding

May help, it got rid of my orthostatic intolerance but gave me horrible hypoglycemic symptoms.

goi

Forgot. The only thing I have found to help with any of this for me is intense exercise.

I have same issues. Everytime I burp my heart skips a beat. I have had similar feelings with low blood sugar. Something to look at. Also b vitamins dilate blood vessels further. Had some really bad attacks on vitamins. B6 is in that complex and if in the form of pyrodoxine is toxic to nerves. Your lucky you can still take ppi. I was on then for 8 years and they suddenly began increasing my nerve pain.

There was mention of propranolol affecting the libido but no detail which way. I assume it was making it worse. I have had a different side affect of it, at least I think it's coming from the propranolol but may just come from being hyperadrenic. My libido has gone through the roof making me hypersexual. Maybe the difference is because I am male, not sure? Anyone else experience this?