KaoruZ

I have blurry vision a lot. I've also had where it seems like eveything's turned upside down. It usually happens during the morning to mid afternoon or all day if I'm having a bad day. I think it happens to most of us here.

There was no temperature control, but I was in one of the smallest cabins. I tried to see if there was in the bigger cabins, but I'm not sure.

I went to Aruba, Curacao, Dominican Republic, and Grand Turk. The excursions were only 2-3 hours. Thankfully most were on air-conditioned buses! Most days it was really hot, so that didn't help any. However, on Curacao, it was around 80, which would have made me pass out as soon as I stepped outside. Apparently they have these constant cool (like really cool) breezes year-round except September. I never thought there'd be a place on earth that was both warm and I didn't pass out. As an added bonus, one of the local products from this island is a cooling spray. I bought tons. I can't seem to find any other like it in the U.S. that works as well :/ It was like me and Curacao were meant to be <3 The crash is same for me. The day after a busy day I'm not quite as functional. I'm sort of like a tired person running on coffee and my family and friends say I don't sound right. The day after that I don't want to leave my apartment.

I have that problem, too. I went to my cardiologist and asked him about it. As most of us know, that did very little good. He just said I was looking at my veins too much. I was looking because they hurt! Especially my hands and feet. I can't let my hands fall down to my sides anymore. I hope you find the answer!

Thanks for the responses. I'm just in education limbo. At least I know what I want to do. I'm just happy I didn't decide on metal working lol To Dizzy Girls, tell your daughter good luck on her book. Art is very fulfilling. I'm super happy for her

Sorry for the long rant. I just know that many here are trying to make major life decisions while having dysautonomia. Expectations and advice from the people that support us may be good or bad. I just don't know where to draw the line.

The reason why I'm posting this is that over New Year's, I went on a week long cruise with my family. I had a pretty solid week of very good days. By good days, I mean I had to make sure I ate, major hydrating, lots of sleeping, and every little trick in the book that we potsies make ourselves do. I had days that I was miserable and wanted to die, but I kept that to myself so I wouldn't ruin the vacation for everyone else. I just told myself to have fun until I collapse because I wasn't saving my spoons for anything else. I was on pure adrenaline. When I returned to my apartment, I crashed for a solid week. I can't even describe how miserable I was. I had no regrets, though. I spent every last spoon and then some to have the time of my life. This has come back to bite me, though. My family keeps judging how I should be all the time based on my behavior during that week. I could hardly do that for one week, let alone all the time! I took two college courses last semester. I got so burnt out I wished everyday a skateboarder would run over me so I could get some rest. I became so depressed from burnout, but my family doesn't see that. I had POTS when I started college, but it was not as bad as it is now. I went from being a full time student to only taking two classes. Now I'm taking the semester off to finish an incomplete course. I am an art student with a concentration in painting and drawing. I've been finding it more and more difficult to do those things. I have been taking classes in digital art because I can do that for much longer than traditional media. I haven't been able to take some of my required classes because they are too dangerous for me. I'm having to make some important decisions right now with my education and life. However, my family has been hard on me. I feel like I can't change my concentration because I have a few good days here and there, but not enough to finish a painting on time. Plus the smell of paint and other media when I'm nauseated is horrible. My mom's advice of “pushing through” just like I could do for that one vacation just makes me sicker, crash longer, and burnout faster. I just feel like my family either wants me sick and bedridden or healthy and doing everything with no in between. I know they just want the best for me. It just seems like when I'm having a bad day, they want me to push harder. When I'm having a good day and crash, I'm scolded for pushing myself. No happy medium is allowed.

I have passed out quite a few times while sitting. It's usually while I'm having a conversation, sitting in class, or painting. If I'm just waiting, I feel awful but I don't pass out. I can last longer if I prop my feet up.

Hi, I'm Sydney. I have had POTS for almost four years. I'm new here I see someone else started a thread about mobile games for the android. I wanted to start one for the iphone. Mobile gaming is pretty great for those cruddy days were getting out of bed is impossible. Does anybody know of any good iphone games that aren't fast paced (for the brain fog days) or have too many flashy effects that might make one sick? I recent favorite of mine is Monument Valley, a puzzle game that is short but not fast paced or flashy and has pretty good music, too. Please share your favorites!