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Hippycrip

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  1. Thanks for all the encouragement and suggestions. I see Dr.Chemali and his PA Grace Jordan in Norfolk Va for the Disautonomia. I had a positive TTT but I'm not sure if they tested me for NCS. My cardiologist is Dr.Martin Goldberg of Newport News Va.He has suggested a pacemaker when I was hospitalized earlier this year,but he wanted to try non surgical remedies first.At first the Fludrocortison and high salt diet seemed to be working,but then the syncope came roaring back with a vengeance. Thanks again for all the info.I will investigate these and keep you all posted.
  2. I'm new to Dinet,having been finally diagnosed with Disautonomia in January of this year.I've had the symptoms since 2003.Needless to say I've been through the gambit of doctors and specialist.My symptoms have steadily gotten worse over the last 6 months.Wednesday my daughter came home from school to find me unresponsive in my wheelchair.She was able to get me inside and called my sister.By the time she got there I had regained consciousness.This in itself is not unusual as I pass quit often when my heart rate goes down in the low 30's. What made this day unusual is that it kept happening,one right after the other.After an hour of this they called the ambulance and off I go to the hospital for the 7th time this year.3 times for bradycardia and 4 times for injuries from bradycardia falls.I gave the doctor at the ER my file that I keep with me and he did all the usual stuff.After about 4 hours he came back and told me that because I had Disautonomia(which he had never heard of),that there was nothing he could do for me.This was the same hospital that I had been admitted to twice before for symptoms nowhere near as severe as I was having that day. That's when dad started behaving badly.I'm passing out four or five times in a row and having anxiety attacks from air hunger due to a partially paralyzed diaphragm.I readily admit I lost my temper when I just took everything off(IV,heart monitor,and O2)and rolled outside.Now my family is mad at me because they think I've given up somehow. Nothing could be farther from the truth. I'm just fed up with the ********I honestly don't see any sense in going to the ER any more. I don't know what to do when this happens again.Has anyone been at this point before? Does anyone have any suggestions or similar history?
  3. One of the hardest lessons I've learned about dealing with panic/anxiety is that when I start to get those feelings,I have to physically address-them now .I 'm way past the point of trying to stuff them down or ignore them.Mine come from more of a physical trigger than an emotional one but anyone who has them knows there very real and debilitating.What works for me is simply getting outside and moving my arms vigorously. After a few minutes the air hunger and anxiety becomes tolerable again and I get fresh air and exercise as well. You'll find your groove just experiment with some new things and don't ignore the warning signs your body gives you
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