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Posts posted by Bigskyfam
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I'm tempted to put on on my hubby for a day...
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Fitbit hr bought
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
marieanne75
auraleighn
RussianAnchor
mwjc_uk
Ajax
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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When you find a med or meds that work for you... Do you ever feel like you did pre-pots? Does it just improve symptoms, alleviate some symptoms or complete 180? Hope this makes sense...
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
Skydersaur
Advaita
MedCJ86
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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I've had my vision checked and no concerns.
I get blurry vision, pulsing with heart beat, dry eyes. Yay for finding a local doc concerned and aware of dysautonomia. That's a true Christmas gift
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First came pots then svt on 30 day monitor 2 years later, EP thinks is it's unrelated, said he doesn't know much about pots. Offered an EP study. I didn't do this because I'm losing my insurance
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I tried ocp- nausea and headaches
I tried mirena- dislodged, embedded
I've had a tubal ligation but trying to manage mennorhagia
Your post is encouraging for progesterone only
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Day... Sometimes hour by hour.
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I've heard anything over 3 months needs to be checked out by gyn. Sorry to hear of your hospitalization. I hope they get it all figured out for an amazing 2016 for you. I know I always think yay... Another piece to the puzzle. Seems my puzzle is bigger than I thought
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
sper167
Snookum96
princesslizlady
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
lakegirl43
Jim W
LisaAndJethro
bikerljd
julian7879
potsie-turvy
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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We moved to a new place 2012.I had my first pots crash fall 2013, we found mold downstairs in our basement summer 2014 and moved into a newer rental with ac. Is it the cause? Prob not, but I think it's a puzzle piece to my health
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
Saralu
POTSN
FinallyaDx
suz
sharkdiver1948
pheonia
sunflower15
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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Searching as well. I had a chest strap hr wrist monitor. Chest strap was just too tight for my liking. I'm just now trying to get adjusted to wearing a bra again. Lol.I have a wrist cuff for hr and BP. Doc prefers upper arm cuff for accuracy. With being at work Id like to be more discreet and track activity as well per my doc. Keep us posted on your pic and thanks to all for suggestions!!!
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
SES64
oldguy
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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Stretchy pants on. Salty snacks and lounging
Happy thanksgiving
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
Couleemom
SES64
Kpsos
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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I'm dancing for Tyler!!!! Well slow upright movements with no coordination that mimic dancing followed by sitting down and drinking water. Great news and as always... Thanks for updating us.
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
Faye
Melissa02
Familygirl
maddiepie2004
Nicola
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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I think the hr apps are fairly accurate
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My specialist said stick with upper arm cuff
I have a wrist cuff. Will buy one around holidays
Does Anyone Own A Fitbit? Would Like To Add Some Friends On The Dashboard.
in Dysautonomia Discussion
Posted
Interesting. Just looking at mine over the past few weeks. It does fluctuate better under control recently but sleeping 50-60 then boom up to 100s. Nothing like the 150s of old. But it seems slight movements make it jump high but it doesn't stay high like it used to. I wonder the same thing as I have aortic root dilation. New cardio in March. Pm me if you'd like to be Fitbit friends.