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Posts posted by Bigskyfam
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
JaneCBLisabTexasDeeWyzredwlfAustin12384EbrahimiSean82KpflmaSophiab123DaltonCaresseroseNorwood2422Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.Bigskyfam -
Hope!
All the best I have to give!!!
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone
Flamingo Girl
Maw2map
Kari918
Goodr189
Vickylou81
mechammoss
kiscica
TredartAlthough I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.Bigskyfam -
I get swelling, redness and warmth in my feet and or hands at random times sometimes just one side. I'm not on meds. If it's my feet I elevate them. Usually it lasts 20-3O min. No explanation has been given :/ sorry. I hope others can chime in!
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
hungarian.malepotsaleenaStarburstImagine 2009angelltheangelDavid1979Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.Bigskyfam -
Same here. Bloating. Most chalk it up to salt and fluids, gi doc said slow gi system...worse around cycles... Better when I'm at a lower altitude
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
belovedcari
kazubelg
Giftbearer
sbilbro
Kai
Worstcase 84
duveduve
bea_rou
dm1016417
jendaisybee
Draven
Thesuzie
Mrose89
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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We all have em! Share em and help this girl out. Hit a rough patch after the holidays like so many and while I'm waiting to thaw out from winter I've been trying new things!
Crockpot meals have been a healthy, time saver and easy on the budget since I'm no longer working. Turbo twisty... Yes the as seen in tv towel for your hair. It's lightweight and perfect for the days I shower but just can't dry my hair
And the funny one... My kids did the grocery shopping and got string cheese with trivia to keep my mind sharp. Haha. Anyway, here's to spring!!!
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Sorry guys for the delay. Rough patch... If anyone understands it's you guys! Thanks for being there!!!
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone.
jeanlit
abizzle229
BethanyP
VaibhavBaj45
DawnPatrol
DizzyChick
Jlbarr5
MyDysautonomia mtnlovingmom
ashyea
MommaHelen
Cowboy
Rose11
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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Nothing personal to offer. Glad she has family support and agreed... Phone consult might be a good plan. I've thought about that for my daughter as she's showing signs of pots
All my best!
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How are the antibiotics treating you?
Round of applause for doc and high five for you
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HR
I do like the activity sleep and such
Hr isn't terribly accurate but has caught two rounds of svt
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone
Bentley
Btarmstr
Bieds
snow4fun
divinelixir
sassyred
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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1st time. 4 months still pending
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Yes. Mine is pending
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I saw improvement with diffusing lavender. However most scents especially 100%pure oils seem to be too much for my system. One drop of a mild essential oil in an entire container of water in a diffuser helped. Benefitted My dog as well as he was uncomfortable with cancer before he died.
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Interesting. I wonder how reliable it is. I know when I go thru the er they draw labs and say yup you are hydrated enough. Give me fluids anyway because of my history and standing order from my doc. I typically feel better afterwards.
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone
HaveGoals
EAGamma
mammy59
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone
RobinB
Hello Darling
JustaSpark
Lynet23
Rah
Valy
LaRu
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
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This is me too a t! Pots, svt, mennorhagia, failed mirena iud. Ocp gave me headaches and I'm over 35.
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How are you feeling now? Did you go in to be seen? I have days like that where it will fluctuate and I don't feel well. I'm not on a bb
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I put mine on my hubby for 3 hours yesterday in the evening. He was up and down making me dinner what I noticed with him... He did go up and down with activity and rest but within a ten beat or so difference.
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone
Lorona
lisag
katyroq
Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief!
This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello.
In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well.
Bigskyfam
Your go-to High Salt Beverages
in Dysautonomia Discussion
Posted
V8