castronovo112587

You have described me exactly as well. The only thing I could think is you may be over doing it on your good days and you pay for it for a few days after. Now its my understanding that beta blockers are not the best for asthmatics, especially ones that are b1 and b2 blockers as it can exasperate asthma symptoms so that can be part of your problem. Dysautonomia is just so random and unpredictable its frustrating!

Sir digby is right when I was on a high dose of propranolol I would always wake up with my heart racing. The diarrhea and flushing however wouldn't be due to beta blocker. Hope tonight goes better for you and you get some nice peaceful sleep.

You need to go to the doctor and have carcinoid ruled out. I am a survivor of carcinoid and diarrhea along with flushing and palpitaton episodes are the hallmark symptoms among many others. They can do a 24hr urine collection and test your chromogranin A to make sure you don't have a carcinoid tumor. I am not trying to scare you by any means but feel it is my duty to tell you. What you are describing can be due to a number or things but it is always best to get the serious thimgs ruled out first.

Yes def don't think its worth it if it doesn't happen often especially since your heart has been checked out thoroughly. This used to freak me out as well so I feel you

Just think its part of autonomic dysfunction as it can affect your heart rate in either direction

I have days where my supine hr is in 50s still goes up to 110 standing. They just worry if your hr is that low and then won't go up as you go up some stairs and exercise, which yours does. When I had holter monitor hr went down to 48 and as high as 136. If your heart as been extensively checked I would just say its part of the autonomic dysfunction.

Steroid shots at known to cause hr increases I believe and definitely known to cause headaches

Mine will sometimes be just one arm or leg or be a whole body jerk and seems to particularly happen when I'm trying to relax and fall asleep at night and they usually don't hurt. What I get that hurts is just sudden sharp shooting pains in chest and head that last a few seconds. As far as the chest burning do you take a beta blocker? That's what was causing mine.

That is great to hear

I get the muscle twitches and used to get the burning over my heart really bad and that started after beta blocker use and stopped after I discontinued use.

I was just more worried about the psychotic affects as I am sensitive to every medicine and always get all the side effects of it and abnormal behavior, delirium, hallucinations and seizures are listed.

How have you guys done on tamiflu? My husband was just swabbed positive for flu a and they put me and rest of family on tamiflu as a prophylactic. I have been reading up on it and quite frankly am scared to take it after reading posts about it causing hallucinations/delirium and seizures. I feel like I may be comming down with the flu though and know its not good to be sick either. I am so torn :/

I thought normal potassium was 3-9 so 5.3 is considered very good. Hope you can find the right med and treatment method for you soon

Hope your doing better today poohbear, sue hope your numbers improve.

Thanks for all the concern guys feeling better then before but still really potty and still have the odd feelings in my feet like somthing is purring or moving around inside and random pains in feet and hands. Followed up with PCI getting tests done on hands and feet and thyroid scan plus more tests to check thyroid levels

Had a bad one the other night bp was 87/53 and then within a few min 143/96 and back down again it is so freaky

Sue I just went to hospital and my tsh was low hoping it is what is causing most of my issues and it can be treated

Yes dkd sounds like mine. I get it constantly in left foot right now and sometimes right. This has been happening for a week and it's freaking me out

As long as it doesn't drop any lower I would stay he if o were you. Just stay layered up and turn up the heat. As far as the flushing and warmth with cold weather and then feeling shivery after I have been getting that as well. What's your natural body temp mine is usually high 96s or 97.1 but temp as been as low as 95.5 on really bad days.

I've had my bp be 120/80 and still feel miserable just part of dysautonomia I guess

They can swab you for the flu pretty quickly.

Yeah its definitely not a flush feeling for me just so weird almost feels like some snake or somthing is circling around in my foot. It is BIZARRE and a brand new symptom for me

I do get burning sensations on occasion but this isn't that just plain old numbness and tingling. The thing that has me freaked out is this series symptom of a constant pulsating and almodt movement type feeling like something is moving around inside my feet particularly my left foot and also the fact that this is happening right after a bad uri as they can trigger gullaine barre syndrome and that sounds terrifying.

I do not believe carcinoid is a nervous system cancer. Its a neuro endocrine tumor

Do you guys get feelings of glass being stuck in your fingers or toes? My hand and feet have always been cold but lately more so then usual and especially during these episodes. Thanks for the input guys.

Hello my fellow forum members. Went to the hospital last night because I've had new numbness and tingling all over body last few days and it keeps increasing and the weird pulsating in my left foot is constant now and i could not get my blood pressure above 83/56. Of course the Dr there never heard of pots but listened to me and and was very nice not dismissive. They Gave me iv fluids and did some bloodwork. For starters he as well as every other doctor I see besides the actual carcinoid specialist thinks my carcinoid is back (I had profound flushing at hospital last night all over my body) my blood work came back with all Ok except my thyroid hormone is low (this was checked right after problems started and was normal) I know hypo or hyper thyroid can cause a vary of issues and many of the symptoms I have from day to day and in addition my mom has hypo thyroid and I know that can be genetic. As far as this sudden onset of frequent numbness and tingling and the constant pulsing in left foot and also symptoms of feeling like I have glass stuck in my fingers or toes randomly, he thinks I have somthing called raynauds syndrome which attacks your nerves and coincedentally can be caused by hypothyroidism or carcinoid(both cause hormonal imbalances) kind of comforted that my thyroid levels were low as weird as it sounds because maybe this is the answer to all of my problems and the key to helping me feel better. As fae as the carcinoid I am getting a full work up at a big cancer center at the end of the month to hopefully rule out recurrence of carcinoid. Has anyone had raynauds syndrome? I had never heard of if before. I follow up with PCP tomorrow and want him to look into guillaine barre syndrome as well since this numbness and tingling started after the onset of a bad upper respiratory infection (which I'm still not full over). Anyone on here have raynauds, gullaine barre, or thyroid issues? Your input is much appreciated thanks