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Rachel

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  1. Rachel I don't know if you are still active on this forum but my daughter struggles with constipation probably due to motility issues. I saw you had success with a probiotic. Can you recommend one for me? 

    1. Rachel

      Rachel

      Hello TorturedSoul, I'm not here often, but I hop on about once a year, so I just saw your question. I did try a probiotic about 15 years ago, and I remember posting about it briefly. I don't think it helped much with my motility issues, though. Miralax has been helpful for me, though.

      A few years ago I did start using a probiotic again, though not for constipation. I am taking it because I read research that said probiotics can help with ME/CFS. So this might not be at all what your daughter needs, but this is the probiotic I use currently. https://www.amazon.com/gp/product/B00JEKYNZA/ref=ppx_yo_dt_b_asin_title_o00_s00?ie=UTF8&psc=1

      I hope you can find something that helps your daughter. 

      All the best,
      Rachel

  2. My fatigue and muscle weakness continue to progress, and I continue to struggle with migraines. I am scaling back on my already substantially limited activity level. I am seeking to live well with dysautonomia and focusing on being a wife and a mother to the best of my ability. I won't be doing much volunteer work for DINET, but you will still find me online, whether on the DINET facebook page, the forum, or on my blog. You are always welcome to visit me in these places!

    1. Rachel

      Rachel

      I have enjoyed my time serving as DINET president, and I am thankful for the various ways I have been able to volunteer for DINET over the years. It has been challenging, rewarding, and fun. Thank you, DINET, for allowing me this opportunity!

  3. Love your new profile picture! Too fun!

    1. Rachel

      Rachel

      I think you would be so much fun to hang out with in real life. If only you lived in Georgia!

      What did you make for your children for costumes? I made costumes for my children this past fall too. My son was Wall-E, and my daughter was a ladybug. It was lots of work, but so much fun to see them dressed up.

    2. (See 1 other reply to this status update)

  4. It is National Chronic Invisible Illness Awareness Week!

  5. Happy 2011! Do you have any goals for this year?

    1. Rachel

      Rachel

      My goal is to simplify. As my health continues to decline, I find that I have too much stuff that is no longer useful to me. In 2011 if it is not useful, beautiful, or sentimental, it goes away. I need a simpler, easier home life so that I can focus on what truly matters - my friends, my family, and my relationship with God.

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