okiedokie123

Hey brothers and sisters, I realize that some of us suffer from dehydrated and dry skin conditions like eczema and an assortment of other skin conditions but mainly, dehydrated, sensitive skin. While staying hydrated internally is important, I'm also curious what do fellow potsies use for their skin? My armament contains Cera Ve cleanser and moisturizer, a mineral water spray, and vitamin C serum to brighten, but skin is still so dry! I even tried oral collagen pills and topical hyaluronic acid... Please share! BQ: anyone suffer from strong BO? As in body odor? lol, mine started when POTS started coming around and I can't get rid of it 8/31/13 Update: Body Odor: - Secret deodorant (Regular or Clinical Strength) - Degree Expert Protection Dry Mouth/Bad Breath: - Biotene products (mouthwash and/or spray) - Throat lozenges (Luden's?) - Xylimelts (great stuff at night!) Mouth/Oral Ulcers: - Dental Paste - Canker Sore Patches (Decreases size overnight) Skin Care: - Cera Ve Hydrating Cleansers - Coconut oil for moisturizing - Baby products - Ology products - California Baby products - Dove Unscented/Sensitive Soap - Any sensitive skin care products Flare Ups: - OTC Antihistamines (I have personal preference for Xyzal but any antihistamine should do) Lip Balm: - Virtuoso (no petroleum) - Coconut oil! Post-Prandial Hypotension/Circulation Issues/Back Pain: - Compression Stockings - Abdominal Binder

Thanks Janet! I used to live in California and should've went to the Arizona Mayo, darn it! It is surprising California doesn't have the specialists, it's amazing really. UCLA and USC are supposedly well known for their medical specialties. Speaking of California, have you found relief in San Diego, CA? A fellow POTSie of mine said she found relief in SD due to the barometric pressure there and consistent weather. Weird. I'll be doing heavy research into the TMC area in Houston, TX and let people know if there's any help here. Thousands from the US and worldwide come here so I don't see why they wouldn't have any dysautonomia/POTS specialists. It's a heavy medical tourism market. I guess it helps that being a new graduate nurse, I should be able to find some connections in the city once I pass my exam and work.

Will do!

Thanks janet and sue! I think I'll be able to get employer health insurance soon after my father gets it. He's about 1 week away from being able to obtain it (after 90 days). Did anyone fly to get to Mayo, Hopkins, or Vanderbilt? Or luckily lived close by? Those are insanely popular choices that I've noticed alot of POTS/EDS/MCAS patients (on this forum anyway) seem to be going to. I live near the "world's largest medical center," the Texas Medical Center but I don't even know where to begin because of the different organizations and whatnot. I have only been able to trace the tilt table test provided by Baylor. Here's a link to some of the well known medical centers in the US, but missing Vanderbilt if anyone's curious: http://en.wikipedia.org/wiki/Medical_centers_in_the_United_States

Hi everyone. I'm just curious but do you pay with a health insurance when you deal with Mayo, Vanderbilt, or any of the above mentioned clinics? I do not have health insurance right now and not a whole lot of money so I'm sort of stuck in the dead end, but trying to manage thanks to advice and tips.

Any of you suffer from sensitivity to sound or noise? I suggest purchasing a white noise machine. I've been using one for the past 2+ years and it's definitely aided me in falling asleep and staying asleep while blocking out sound. Though, in cases where my mind is running or I have increased anxiety due to something the next day, it can't really help with that.

Yes, there's definitely some correlation between dry skin or nerve damage to the skin area and POTS. Could I ask you all if it's just one part of your skin/body or is the dry skin all over? Mine stays only on the chin area only. However, I notice I get scars more easily all over my body, due to poor circulation I am assuming, like diabetes and I also have slight hyperpigmentation on the chin that refuses to go away. Though, it's not exactly like cutaneous mcas, but more like a rosacea-type because it flushes, is dry, and gets irritated. If we just have an eczema/dehydrated skin, is there no prescription moisturizer that can do the trick? Or is this something that we have to try to treat the underlying problem? Very interesting. I'm glad I'm not the only one going through with skin issues.

A little tip to people who suffer from gerd/acid reflux....buy some cheap bricks from your local home improvement store and put them under your mattress foundation so it tilts the bed at a slight angle. It helps with gerd/acid reflux at night.

Hey all, I'm new here and got a semi-diagnosis of POTS. It took about 2 years to finally find out what I had but I'm sure I had POTS since my adolescence. I'm 22 now. I've been reading up on tips and posts on this forum and found them all to be very helpful and informative. I'm doing a little bit better with those tips, interventions, and proper meds. However, I haven't found many skin condition posts other than cutaneous mastocytosis which seems to affect alot of POTSies. I don't have that, however, and so I'm wondering if anyone has something similar to what I have. -Rosacea (flushing on side of nose to chin, especially after eating or yawning) -Seb derm on sides of nose (go away with H&S) -Severely dehydrated and dry chin with flakes and mouth wrinkles (not seb derm because medication doesn't help and don't think it's sebum plugs either because the skin gets oily easily but seems dehydrated..gets real flaky after eating dry foods like bread) Doctors are dumbfounded on the chin because they think of either eczema, seborrheic dermatitis, or PD. Medications to treat those conditions do not help. Anyone have any of these skin conditions? Is there a correlation with these and POTS?

Hi I can vouch for this. I was going through a bout of chronic insomnia (I didn't think about POTS at this time) so one doctor decided to prescribe Xanax for "severe anxiety." Even after a partial-wean, I experienced full blown benzo withdrawal, which I tried to help get better with time, Valerian root, etc. Eventually, I got too sensitive to sound and noticed my strange flushing, nervousness, etc. At the time I don't think I had orthostatic intolerance but the symptoms closely resembled POTS, to which it took 2 years later to find out what I really had of course with worsening symptoms.