Hi! Thanks for your response! The bed rest is Dr recommended, due to the severity of my disease. I don't have straight up pots, I have a sevee authonomic neuropathy which as Dr. Grubb explained, is in a different category than POTs althought it has many similar symptoms. It is due to the fact that I'm unable to sit / stand for any length of time, but I also require 24 hour 0xygen because my heart and lungs are too weak to pump enough o2 through. It's complicated. I do what I can. I do leg lifts and stretching/toning exercises as much as possible, however I have a myopathy that actually causes me to get worse the mroe I do, so I get in trouble the more I exercise, from Dr's, and my caretakers. I do leg lifts in the middle of the night so I don't get caught I was a big fitness freak before I got sick and this drives me absolutely nuts.... I have learned to adapt as best I can. I have been throught ever test, dr, treatment and experimental treatment I think they have that I can find. I even found some that I was going to try to help write the protocols for, but ended up being too high risk at the last miinute. I'm 31 with a 5 year old daughter... if there was any way on this planet I could get up and do more, I would. My greatest battle every day is not doing to much, and most days I end up hurting myself, which is when my BP seems to soar, but the high BP is a relatively new addition, as I've been sick for 4 years now and just developed the high BP last Nov. I appreciate your advice and help. This has been a wonderful group I'm so glad I posted. It has given me a chance to reach out and feel less alone. I haven't wanted to give in to the fact that I was 'sick' for a long time, but I'm starting to reach out more to people and it helps immensely. Thank you so much and best wishes to you too!