tpapik

It seems when one symptom gets better I get another. I tried searching on here with not much luck so im starting a new thread. I am in the process of being maybe diagnosed with SFN. Lately I have had more energy, sleep well, no more chest pain (I had that for a while but think it was my birth control I stopped that and its gone) , no more nausea really... But i started to have Muscle spasms or medical term for it "Muscle facculations" does anyone else with POTS have this symptom? It is a little concerning but not sure what to take of it. If you answered in the poll "Under certain circumstances" what do you find may be causing it? Thanks!

of course it counts!

Hey! I am a nurse- just diagnosed in november im trying to keep my job at least part time (40 hours a week) and would like to go back full time, so just wondering if there are any other nurses out there or any other people that have POTS and works on their feet all day?

and yes voluteer (sorry dont know your name) we will see our babies in heaven! Healthy, not sick , no tears, no fear , no pain, and I will grab her with open arms

I suppose I wouldn't say Lupus is deadly... I have a very strong amazing coworker thats 26 living it GREAT with lupus. Though I do know the understandings of its complications. but shes a wonderful person and a wonderful Nurse. , she just has to take extra special precautions when caring for certain patients.

Thanks for the stern encouragement! No joke , I need it. THis is what happened to me in my diagnosis which led to a quick diagnosis and and testing . I was pregnant , had a premature birth, my baby girl lived to be a week, died a week later, 2 weeks after that I wind up in the hospital with tachycardia shortness of breath, lightheadedness nd back in the hospital for total of a month (if you count when i was in still pregnant trying to hold my baby in) . tilt table done at the hospital (a hospital that is close to the Cleveland Clinic) was tested when admitted for adrenal problems, thyroid biopsy for the nodule, and MRI head, CT angiogram, blah blah and finally discharged- I think I was diagnosed easy because I live close to the cleveland clinic with doctors who are close to their studies. Some how got in to see Dr. Jaeger quickly . who did the Sqart, stress echo, vasvular (sp) , blood volume, in about a month or so spand. who then send me to a neuromuscular doc right after the abnormal Sqart. I know I should be lucky for sure...... I just feel like im degrading instead of improving! It went from just tachycardia , to achyness, pinpoint prick feelings, fatigue, nausea AND a worsening tachy cardia, (probably because im being so darn stressed about it) Good news is monday im going to counseling- which is an obvious need because I feel like I havent even been able to mourn the death of Nora. & thru pregnancy and this im a HUGE hypochondriac (if we haven't noticed) and trust me I ADMIT IT! now its just - - - getting over that and trusting in my God.... who holds my strength.

never heard of it but sounds interesting

thyroid levels are normal despite a thyroid nodule that was found- which biopsy was negetive.

I went to the neuro muscular doctor for the first time at the cleveland clinic for an abnormal Qsart test . and now have a skin biopsy and thermoregulatory sweat test scheduled for march (ooooh the wait) :-( . So question to those who have had a Positive Qsart test or really a Positive skin biopsy. Can small fiber neuropathy - be fatal? meaning can the underlying cause of the small fiber neuropathy be fatal . So far all the B vitamins were WNL , and my vitamin D was just slightly low. I always have Normal CBC BMP, just tachycardia with some GI issues. (always hungry OR always nauseated) . very sensitive to Adhesive and Latex. Dr. doesnt want to do an EMG . so far Positive sweat test, Positive Qsart negetive Valvsoler (sp) and moderate pooling into the lower legs. Fatigue to the extreme and high heart rate. anyn suggestions? I just want to know that I am not going to die :-( I feel like I have had enough testing Negetive COlonoscopy, EGD- showed Gastritis, negetive upper abdominal ultrasound, negetive MRI brain, Normal HIDA scan. Normal EKG's with random PVS's sometimes other than tachycardia. I am going to call to see if cardiorehab is available for me if so will start that. (if insurance covers it, at the cleveland clinic) I am just being a hypochondriac and dont want to die at 26 or even 30

appoitnment is tomorrow- I have been ruled out on thyroid issues, anemia, all the simple things. my sqart test showed abnormal - so looking at small fiber neuropathy/

I happen to live close to the cleveland clinic- so this is where I am going ; what other neuromuscular diseases are there? weir thing is i can still do 10 pushups easily. during my tilt table my blood pressure stayed the same.... but my heart went directly tachy to 140's not even seconds upon lifting me up.... and as soon as they put me down- back to normal. no symptoms of dizziness whatsoever.....no symptoms at all which is weird

sorry MRI brain negetive

lately ive been getting very weak. (background story) I was diagnosed in november with POTS after the premature loss of my baby. tachycardia - negetive MRI of the brain positive TTT, abnormal Sqart. normal Valvoler *sp* normal adrenal fuction, normal echo stress test, inappropriate sinus tachycardia. - and now f/u with a neuro muscular doctor tomorrow for possible small fiber neuropathy right now my symptoms are fatigue, nausea, tachycardia (alot) but more recently im really scared- my left arm is very weak. sometimes it twitches- weaker than my right. when I blow dry my hair its hard to do it without fatigue. its always achy. I am now thinking I may have ALS :-( (Leugerigs disease) anyone have any advice or encouragement as i am so very scared Thanks Tiffany