Mrs. Burschman

I WON'T take Cipro, and docs won't prescribe it for me, because I got a clostridium difficile colitis infection that took a year to get rid of the last time (and only time) I ever took it.

I've found that Macrobid works just fine for me.

I don't tell anyone unless I have reason to. That's not very often. I'm lucky in that my case isn't really severe enough that it causes me many problems (unless I get dehydrated or have to stand too long.)

Oh man, poop fruits...that had me cracking up. Never thought of that before!

Not the most appetizing description ...

Not exercise, but I could see how it could happen. I've gotten them from overstimulation and even being angry.

Amy

Maisie I hate the flavor of bananas and always have! As well as their mushiness.

haha, Mrs. Burschman. Actually, I really shouldn't be low on potassium bc I choke a banana down everyday plus two glasses of milk

I don't like them, either. I only eat them if they're green, because then they have less flavor. Ugh.

Also, sometimes antidepressants HELP POTS SYMPTOMS. A lot of us take them, even if we haven't had problems with stress/anxiety, because they calm down the sympathetic nervous system, which tends to be out of whack in a lot of us. I get PHYSICALLY sick as a dog when I don't take my Paxil.

You're right about not getting off of them, however. I don't see that happening for me anytime soon, unless I find some miracle cure elsewhere.

Amy

I'd rather have a Yuengling! That's good beer!

I think this is actually a pretty common occurence. I've never had it happen, but I've heard of it happening to a lot of people.

Ouch! I've only had individual muscles -- usually a calf, foot arch or under my chin if I yawn too big.

It sounds awful!

Maybe you're low on potassium? (Sorry -- banana joke.)

I got this really bad when I tried to stop my Paxil. Hands and feet both tinging. It's an icky feeling.

I'll come to your pity party! I'll bring pretzels. And punch.

Welcome! Glad you found us, sorry you had the need. Yada, yada.

Sounds like you fit in with us!

Amy

I can't give you any of that, but I can give you an ehug!

((((firewatcher))))

Great! I've sold two houses, and I know how stressful it can be. I'm so happy for you!

Amy

I CAN'T STAND riding in the car. The lurching and turning, especially in stop-and-go driving, make me feel awful. I'm fine if I'm driving. I think then, I know what's coming, so my body isn't surprised by every little movement.

Amy

I think I'm the opposite. I had an ovarian cyst rupture, and I thought I was going to die. I think the emergency room literally thought I might die. It took four times to find a pulse, and my hands and feet were starting to go numb. I was fully conscious, though. I don't think they quite knew what to make of me.

Amy

I work full time, but it's a total desk job (copywriting and blogging.) I do walk to and from work, however. I'm usually OK upright if I'm moving.

Amy

I have a full-time job as an RN in a children's hospital. I just finished nursing school in May, and have been working up until the end of September, when POTS kicked me hard and I couldn't get out of bed. I've been on medical leave since then, but have to go back to work in mid-December or I will lose my job. I don't know how people do it! I'm not sure what's going to happen to me. My health is so unpredictable day-to-day... and you can't do 12.5 hour shifts like that, so I'm trying to figure out if there's something I can do as an RN where there is more flexibility and I don't have to spend so many hours on my feet in stressful conditions...

I seriously don't know what to do, and I'm self-supporting...

If ANYONE has any suggestions for me, I would LOVE YOU FOREVER!!!!!

Stacy

A lot of hospitals offer "Ask a Nurse" hotlines that are staffed by nurses. Would that be an option? Or doctor offices. At least the hours would likely be shorter. It sounds miserable!

Amy

I suspect that it was the heat and the distress of the appointment combined that triggered the fainting (can you dehydrate from crying??).

YES. At least I have before.

The doctor also went through my meds list and told me to stop taking :paroxetine, antihistamines, H2 blockers, montelukast, asthma inhalers, epi-pen, paracetamol and codeine as they would make my POTS worse. The SSRI was actually prescribed for POTS, and without the allergy stuff my POTS is so bad I can hardly get out of bed. I can probably learn to live without the painkillers but I get so many blackout-EDS related injuries that I do take intermittent painkillers.

That doctor sounds like a moron. Seriously.

Amy

Hi Lynn! Nice to "meet" you!

I'm glad you found our site (but sorry that it sounds like you fit in.)

Welcome to the family!

Amy

Very interesting. It would be great if he turned out to be right.

Amy

I've felt "too drooly" at times. Annoying! Glad to know I'm not the only one!

I do find if I drink a large amount of very cold water it will help - seems to chill me at the core. But overall I still feel very sick in the summer - I dread summers!

I love to slurp on ice cubes -- for the same reason.

I'm always worse at PMS time, too. Digestive and bladder discomfort seem particularly worse.

Why, I do not know. I'd guess hormones, but it would just be a guess.

Amy