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Posts posted by Angela

  1. i would agree with the sleep issue being a factor or possibly a trigger. I started sleepwalking after getting pots and my pots kicked in hardcore not during pregnancy or right after but actually when my son was a baby and not sleeping thru the night plus working full time, I got horrible sleep.

  2. this is why yoga is awesome....it will do wonders for your posture. I recommend vinyasa and concentrate more on your posture and breathing than keeping up with the moves. Just be careful and listen to your body as before I was dx'd with pots I almost passed out in downward dog....I think the blood to my brain turned everything black.

  3. I would venture to think that asthma attacks and air hunger are part of dysautonomia. I never had allergies until pots but my 3 yr old for sure has allergies...freaks me the f out. but wouldn't do anything to discomfort yourself....my hr was 150 today but some days it is only 100 standing; my doc is not figuring this out albeit\ maybe because I refuse to try any med out there.

    where do you live? I heard there is a good cardio in Cleveland ohio dr. Muhammad oli who treats pots patients. I have also read some of his political articles, although not republican or etc. he seems very intelligent and kind.

  4. i was dx'd with ptsd too and was told that is what triggered my pots and also was abused as a child. I also suffered whiplash not sure how that has to do with it but my pots kicked in within 1 month later I would say. my vitamin b levels were off the roof according to my doctor, he said not to take vitamin b supplements anymore as too high vitamin b levels are now being linked to cause cancer.

  5. my bp swings too, tends to be high dialostic during the day even sitting but drops at night and at some points during the day too at a point which is what is considered normal. my neuro rx'd me this almost a year ago, never filled the prescription. somehow i just don't feel its right for me? idkw i have that feeling except maybe that my tachy is not that bad, never goes above 130 140 that i clock anymore. i don't take it standing anymore either tho. if u decide to try, let me know how it goes! interesting tho that Afrin is rx'ing it.

  6. thank you, that was interesting. also, 23&me can possibly tell you what you are intolerant of, for example it showed the blood thinner walfarin, i need to warn my dr.s about as i am "not tolerant". (in case I need surgury) so happy you are so strong and pulled thru. Wow, all cuz of yoga? do you have eds may I ask? I plan on starting yoga again and i was wondering how you got herniated disc? I am betting overexertion? but if not, than what?

  7. yeah good bump. not much meds after 2+ yrs help so far and so i vote with the worse. living a normal life is nothing the quality as what well people can do. i mean, if you HAVE to take meds, they should def help. Right? like make you able to function, work, raise a family. I work, i cannot go thru drug trial after trial to make me sicker. not my neuro's fault by far, just i wish more would be invested into research.

  8. yeah, sound similar, when i came down with pots bad I was doing vinyasa/power yoga and the real kicker was after shower, trying to blow dry my hair, hence lifting up my arms. idk, cuz i could somewhat tolerate bridges tho, hands crossed underneath? it was a harder move for me as far as yoga went, but blowdrying my hair much worse go figure! btw, did you mean clonazepam i think? that controlled my total body shaking completely if so. I only take 1mg. if that is what he was on, how many mgs?

  9. i just wrote a longish message and somehow it got messed up by my laptop. anyway, have you tried taking an h1 and an h2 AT THE SAME TIME every a.m. and p.m. 10 mg. of each is what i take every morning and night. i def think it helps me....the tingling sensation in my feet and hands is gone now. my neuro said mast cell is very hard to catch. cmy hr is lower, not sure if it is because of this tho. bp still messed up:{

  10. so wikapedia reports if you are responding to antihistamines it probably isn't a factor...i skimmed thru this as it is quite interesting, i worked in a restaraunt 10 years ago and it was weird, both patrons and employees were exhibiting the symptoms described as well as rashes on face, this is when i first experienced presymp. seeing stars and vision issues, didn't last long, just a month or so, normal blood workup showed nothing. also developed a rash on my torso at that time.

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