Mytwogirlsrox
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Posts posted by Mytwogirlsrox
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Institutions have different reference ranges FYI, as I'm sure your learning and different doctors interpret results differently. I would just celebrate the little piece of mind that thus far, everything looks normal. It looks like they ruled out some heavy diagnoses
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How does that feel? Your heart being starved Of blood?
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Just off the top of my head.. How is your CBC? There is a hemeglobin binding capacity they check for.. Pulmonary function testing.. Anything abnormal in that regard? Poor circulation? How ate your blood gases? Maybe they should check that.. I know for me, my Dr wasn't interested in closing my PFO b/c I haven't had a stroke. I just do baby aspirin
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I have POTS and a PFO and my sats are never low. Maybe 97 if I'm cold
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I was diagnosed @ Florida Hospital Tampa (formerly university hospital I think) i don't think I would consider then specialists but they knew enough to diagnose me!
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Mine were normal
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I have varicose veins! My mom has them and I got them after being pregnant... Yay! Lol
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I'm curious to know what that means. Petchaie? Maybe? Or bruises?
If you are clotting and getting clots, how is your CBC? And clotting factors?
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Hey I had mine on feb 23rd! Cheers!
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Just wondering what y'all think. I had an "anxiety attack" today, I was feeling dizzy then it came on.. Heart racing , legs turning to jello etc.. However, afterwards I was so HOT for like an hour I was vasodialated in my hands/ arms and soo hot. Usually I'm cold. Not sure what to think ?!?
I started nursing school, and today was day 2 of clinicals so I know stress really got me going BUT why the hot feeling? I'm worried my BP was super high ( I don't know why, I don't have high BP or Hyperpots) I just thought maybe my BP spiked and my body was compensating by vasodialating?
Thanks
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I'm in nursing school... Does that count?
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Pregnancy? Cessation of breast feeding? Caesarian section? Pre-eclampsia? Traumatic emotional experience? Stress?
Who knows?
I've never had a Dr look into it..
But, it came with anxiety attacks, eye floaters, and weird visual stuff
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I drink, I had 4 beers last night ha ha ha! That's a lot for me! We were having a party and I was thirsty but I was dehydrated this morning. But I lived!
I guess you'll only find out, if you try it!
Good luck!
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I feel nasty doing squats! There is a change in chest pressure and venous return to the heart when you do squats.. Sometimes the increase and decrease throws my heart for a loop
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Statix you sound just like me. Dr said its more or less mild orthostatic hypotension
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Hey you sound like me. I was diagnosed with POTS and I only have tachy upon standing and anxiety now (regardless of position lol) I'm interested in your story
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I think about this often. I have stretchy skin, Im double jointed, I have stretch marks, varicose veins and OI.
I just dont have any joint pain. I can also blame my symptoms on gain/loss of substantial weight (stretchy skin), big pregnancies (varicose veins). I also only score a 2 or 3 on the hyper mobile scale.
I've asked before on EDS websites and they said of there isnt any pain, don't worry about it. So is pain a main diagnosis criteria?
I don't know
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I don't think that's considered a fever, everyones temp changes through out the day, and increases in the evening.
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Achilles-- anything is possible.
I can't speak for anyone else, because everyone's pots is seemingly different. BUT, I slowly (over 9 months) recovered greatly. Reducing stress, hydrating, increasing salt, taking supplements, increasing exercise. A SSRI really helped me in the beginning. It's been a year since my symptoms began, and honestly I feel so much better. I function at 98%, I would say that I still have a little anxiety and feel palpitations upon standing, or in situations. Dr said I might have a mild case of orthostatic hypotension ( still get fuzzy vision if I stand up too fast -- I've always had this though)
Anyways. Always have hope! It just takes time.. There are studies that say most POTS patients will have improvement within on year of diagnosis. I think in time, you will find what works for your body and you will improve.
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I never had anxiety till I had pots symptoms., so they're related -- In my opinion'. Who knows, Dysautonomia might just cause anxiety-- they're the same darn chemicals that mess everything else up. Why don't Drs think that rationally? Or at least recognize that anxiety is a symptom of Dysautonomia. I think for me, it was really beneficial to deal with my anxieties... Pots got easier to manage, and I no longer fit the pots diagnosis criteria. But I don't chalk that up to solving my anxiety purely. I still suffer "panic attacks" I've just learned coping mechanisims so they're not as frequent and less intense.
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I got them right after I was diagnosed! Not sure if I had them before and was the just hyper vigilant.. But definitely started noticing them after a visual migraine, 2 syncopal episodes and pots diagnosis
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What does that mean?
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I was diagnosed after two horrible pregnancies last year. I no longer fit pots criteria, so I would say yes, I have improved. I still have some symptoms -- mild OH and a bit of anxiety though
On Tachycardia, Exercise, And Symptoms
in Dysautonomia Discussion
Posted
Over time my HR went from the 150s to 90s standing. I was exercising, now I'm not and it's still in the 90s. So who knows.
I did notice that after exercise my HR was elevated for at least a day. For instance if my baseline standing is 110 then it would be 130 for at least a day after vigorous exercise, and 90-100 sitting