luckygoat3

Well, i guess i am not alone in this department either, i got a handicapp sticker thingy for the county fair which i am there for a week and my mom had this fear of me sick in the dark way in the back parking lot. So we decided a handicapp sticker was best, the first day this old guy goes you know you are in handicapp parking, my response "Oh i know i am, i have an illness that makes it hard for me to walk far distances w/out falling". he shut up and didn't say anything after that.

i only use it when i need to or can't find a parking space close to walk to the store.

susie

Hi,

My name is Susie, I see your 19, i am too. If you want to email me or PM me feel free too.

I would also suggest DYNA Kids, they are for kids and young adults w/ dysautonomia, which has been sooo helpful for me.

susie

Ken Davis, he's a physcolist (sp), in toledo, ohio.

susie

Hi all,

I need the contact info for him,

susie

Does anyone have horrible dreams with taking an SSRI? i did when i took celexa now i am being to get horrible dreams with lexapro?

any help would be great,

susie

nancyd please emailing me again, it must have gotten lost in outta internet

susie

anyone gone to any headache clinics then or pain clinics?

I am wondering who has been to the headache clinic in michigan....any advice would be great, you can email me also

Susie

If your daughter is looking for support try www.dynakids.org, they have a great place and of course LOADS of information.

Wishing you the best

Susie

Proud DYNA member

To any other DYNA members,

Posting information about other members is forbidden on any other forums.

Kristen,

I respect DYNA and the president's descions in terminating/supsending members, as there is always a good reason. DYNA doesn't allow any information of it's members to be posted in any other forums. When you joined you accepted the rules, and then you broke them, plain and simple.

susie

Hi,

You may also want to check out www.dynakids.org. they are aimed towards kids and young adults.

wishing you luck,

susie

go to the DYNA site and sign to be a member of DYNA and they will give you the info.

HI,

www.dynakids.org is for children and young adults with dysautonomia. you might want to check them out.

susie

Hey,

I am a teen too:) anyways have you joined www.dynakids.org, its an awesome group for kids and young adults with dysautonomia.

susie

Hi,

have you checked www.dynakids.org, if your daughter would like support or just to know she's not alone. it's a wonderful site!

Well, i got the shakes at the social remember megan? okay mine was cuz the pain got so INTENSE, that i couldn't stop moving, grubb said relax and i couldn't stop them, i held them in and they were worse. i ended up in the er with the migriane and the tremors and once the pain went down a little the tremors stopped.

does that make sense.....i have had the worst migrianes for weeks and nothing has touched it working on finding an answer.

YES the lecture was very nice, well what i saw anywho. lol let's just say grubb sat over top of me while i had tremors bad and a headache....but from what i heard saw and remember it was great. lol

YES the leture will be taped...it's professionally done so it most likely will be ready 4 to 6 weeks after the social, last years tape was wonderful.

If you would like more info just visit www.dynakids.org, something will be eventally posted as soon as it becomes avaible.

Also the DYNA kids worked really hard on the other fundraising project which is a cookbook filled with recipes and other sorts of info.....again check the site.

susie

my dad and i took it back and the tech was like why you bringing it back...lol, i remained calm but if my dad wasn't with me i would have let them have it cuz the rubbing alchol is what opened the pores on the chest area, it's like peroxide and putting a bandade on (yes i have down that it itches and burns bad)...

but frankily i don't care if i get another monitor as i would rather have a heart watch instead.

susie

i had a heart monitor put on today at 9am and i just took the dang thing off cuz it was VERY VERY VERY itchy were they stuck those **** pads. I took them off and my chest area is BEAT red looks like a very bad sunburn. Anywho, i am giving up on it cuz it ain't worth the torture i had for 2 hrs (yes i cried along with swearing about docs, man i hate tests...giving five vials a blood is easy)....sorry but needed to vent....

susie

gatorade is a sport drink with electroyletes in it. www.gatorade.com.

hope thathelps

I don't take florinef. I only take a calcuim channel blocker 20mg, bextra, advil, claritin, umm and a multi vitamin.

Currently the headache isn't full force but when it does watch out.

I eat lots of salty foods and drink TONS of gatorade. I also drink a can of pepsi in the AM to give me some engery as i don't have much.

susie

Hi all,

My mom talked to the doctor and i have an appt next week, he's just a family doc but he is trying his best. Anywho he said would i like to go to the university of michigan's headache clinic, well i am not how well they are but right NOW i will try anything. if you have any comments please please post or email me.

susie

good job vickie!

susie

there will be information after the social, but it's done locally. Umm, last years can be ordered via, DYNA VIDEO. it's very moving, i must say, a lot of parents had tears at the end. i must say it's worth every PENNY of the cost.

susie