sonyasmith12

I went to Dr. Flipse for a second opinion regarding POTS, and I've never had such a thorough exam and interview/discussion with a Doctor ever. He has no quick fixes for POTS, but he at least eases some of your concerns. Hope this information will help you.

Mine is 50-60s on Betablocker med, 70's without med.

I was only told I had autonomic neuropathy & POTS.

You have all been such an amazing help. I don't feel as lost and anxious over this diagnosis. Thank you all so much. I pray the Lord just leads my way, since its so easy to get all caught up in the poor me attitude. Does anyone have a problem with their husbands being irritated or distant when you are sick???

Yes, but I don't have vertigo, like you do. Are you dizzy from vertigo or POTS??

I'm so sorry you are having such a hard time. I remember when I first started taking fludrocortisone, it didn't really help because I was not drinking enough water and taking in enough salt. It doesn't work without all three components. I'm on 0.2mg now and it made a significant difference, but we are all different. I hope you feel better soon..

I am going to Dr. Flipse at Mayo Jax on Wed 3/14. My current electrophysiologist just threw me to the wolves. Didn't explain much, and was very insensitive stating this is my life now, you need to deal with it. NO hope. That was very depressing to me. So I need to find someone who cares in South FL to treat POTS patients. Help

Thanks. It's just so difficult to come to grips with being such a burden. I have been unable to work, house work, even showers exhausts me. I go to gym, do one tenth of what I used to and get short of breath, then later I get really sick. Faily does not understand, I worry they are just sick of me.

Hi, I'm a 41yr old nurse from South Florida. I have been very sick since Oct 2011. Took months to finally get autonomic testing at the Cleveland Clinic in Weston FL. Now that they confirmed that I do have POTS and dysautonomia, they have no idea was has caused it. The electrophysiolist stated to me "This is your life now, we really can't do much, you just have to get used to it. ? NO Hope. I felt like I was being abandoned. I cannot find anyone in South Florida that treats POTS. I do have a apt at Mayo Clinic in Jackson will next week for a 2nd opinion from a Electrophysiologist there. Am I wasting my time going 6hrs away? Do You have any suggestions.