kalamazoo

Did you have the leg pain prior to treatment? And I've had EMGs in my hands and they were fine, the issue is mostly in my legs. I think I need to get them in my legs. 

How much does it alleviate your symptoms and prior to treatment did you  get a lot of leg pain? I get a lot of leg pain all throughout my legs, kind of dull and achey and random but i get pain maybe once an hour in different spots. I'm hoping it is the cause but I worry.

Does anyone else have peripheral neuropathy? I do have insulin resistance that has only recently been under control but my neuropathy has been getting worse. My feet are always cold and any change in temperature drives me nuts. When I try to go to sleep my legs tingle and burn and ache and it's hard to fall asleep. Anyone else experience this?

Propranolol raised my BP quite a lot

I would work on finding out what she can tolerate, intimacy wise. Like this might be TMI but personally I need certain things to feel okay. The room has to be cold, I can't just have eaten, i can't be on top because i get light headed, sometimes I have to take breaks. I've been with my BF for 6 years and he's accommodated everything I need and understand, it took a lot of the guilt away of not being able to act like a 20 something year old with a high sex drive. I hope that makes sense. Talk to her about it.

I have severe panic attacks, have for years, not as much now as I've learned to control them. But when I get nervous, say if I'm coming to a stop light and don't notice how close people are and have to slam on my breaks or something or if i have to present in front of people i get a little bit nervous but then it's like a rush, a flood of a panic attack. I can feel it, it just releases and my body feels weird and it's hard to breath and my heart starts pounding out of my hearts and i get shaky etc.

hyper pots, PCOS, insulin resistance, erythromelelgias, pineal cyst, *possible MCAS, GERD and I feel like there's more lol

Oh i have a lot its horrible with any physical exertion but the propranolol didnt help much to begin with

My heart rate is almost the same i'd say to be honest, i mostly took propranolol to avoid panic attacks and spikes in my anxiety levels, so i feel a bit more anxious but it's an okay level

I have elevated stuff in my blood, i don't remember the name, i have a urine test tomorrow to get it officially checked.  But yeah i feel like propranolo helped take the edge off aas far as panic attacks and stuff but my breathing was rough, my chest got tight a lot

Well I saw a pulmonologist, and I don't have asthma or anything like that and my lungs function okay. I am being testing for MCAS though but yeah I think the propranolol made it way worse.

Over the last 6 months my BP was slowly increasing and was usually around 130/100 with the diastolic at least 90. I started increasing my propranolol dosage thinking it would help lower my BP. Was in the hospital once for a BP of 155/110. Very scary.

Well I've been off propranolol for a month now and my BP is almost ALWAYS normal. Just took it right now 118/78. Completely normal. And I feel better, less breathing issues as well.

I have hyper pots so my BP does get elevated when I'm active but now it's normal when resting and lower in general.

Thought I'd give an update!

I have hyper pots. My pots began as panic attacks and then escalated from there. I have had panic attacks for years and anxiety everyday

 Has she been checked for ehler danlos syndrome or reynauds

What type of pots do you have

I've got bronchitis and i cant take bronchiodilators because it makes my heart freak out. What medicines have you guys used with little to no side effects when you're sick?

Since becoming vegan/low carb mod fat I have felt sooo much better. I originally stopped eating meat because my doctor told me that when you eat dense foods your blood goes to your gut to assist with digestion, by not eating dense foods and smaller meals it limits that. And it really helps. My stomach is really sensitive but if I over eat or eat too much fat Ifeel bad. Veganism has helped me feel waaaaay better, I lost weight, have more energy and I eat 3/4 small meals every 4/5 hours. It has helped me a lot, but everyone is different of course but I recommend it as long as you're supplementing correctly as needed.

The important thing about food is that you eat a variety. You need multiple sources of vitamins and proteins from different sources. As long as you're supplementing your diet with vitamins, shakes etc you should be fine. People usually lean two ways when it comes to dieting, KETO which is high fat low carb or low fat high carb. Your body needs 1 or the other to sustain itself. This is exactly what my nutritionist/dietitian told me. I'm vegan and have been for a long time and recently moved over to low carb moderate fat. Obviously everybody needs time to adjust to dietary changes but do what works for you but remember you need something to sustain you. 

You should get an oral glucose tolerance test. you fast, get blood work, then drink a solution of basically pure sugar and come back 2 hours later so they can check both your blood sugar and insulin levels. Since i was diagnosed i feel soooooo much better now that I know why i felt so horrible. When my blood sugar and insulin levels were really high I felt HORRIBLE, it aggravated my pots symptoms so much it's crazy i feel so much better now and i've already lost 20 lbs in a month

download myfitnesspal and log everything you eat, you can see all of your nutrition data. I have insulin resistance and i feel horrible when i eat wrong. even the slightest thing off affects me

^ I'm the exact same way.

Hi yes i have this. Not 24/7 but when im having a flare or am hot. I was diagnosed with erythromlelgia years ago and had the really red hot extremeties also back then. I currently don't get that often, now it's just my veins. Can't take hot showers cause my feet and knees hurt and swell like i can feel the blood pooling. When I'm hot i cant have my hands below my heart or they pool and feel like they're going to explode. I can barely drink/eat hot foods cause i get flares. I dont think its pots personally. I'm going to UW in july so hopefully they can give me answers. I also have insulin resistance

i moved back to Alaska when I was my sickest and was living in Arizona for a few years. It was dreadful and leaving the house meant immediate flares and episodes. I'm so sorry you're kind of stuck like that, I hope you get some good AC or find a place you'd enjoy living in

Look up erythromlelgia if you're getting red/purple feet. I too have this, i also have hyper pots and insulin resistance and pcos. All affect blood pressure and heart rate because of hormonal imbalances and the struggle on the endocrine system. Everyone on this site has such a wide array of symptoms but yours sound familiar. The thing with pots symptoms is they can mimic a ton of other issues so make sure you get a thorough work up. With my hyper pots i have 120/85 resting bp. And very high bp doing things along with heart rate and pooling in ny extremeties as well.

I have the same issue, 80 is really hot and i cant be in direct sunlight either or it makes me flare suuuper bad.