heissovereign

Hello, Does anyone else have to make themselves drink, when I was a kid my mom would always get onto me because i could go a whole day and not realize I didn't drink anything.. I was researching it as I still hardly ever get thirsty, and found a link to that and MVPS/D. so here's a question... How is that diagnosed? I have mild regurgitation in my Mitral, Tricuspid, and pulmonary valves. and every symptom listed for this.. I have also read that it is linked to POTS, is this true? I only have been diagnosed with the NCS part of dysautonomia. Mostly because I am un insured, but hopefully that will change soon. I have been living with all of these symptoms all my life but never with answers until now, so i'm still a bit confused as my cardiologist doesn't explain much... any input, I will be very grateful...

interesting!!!

Doozlygirl, Yes it is just like being sedated. I do have a home BP machine and I usually write it off as just my low HR so i don't check my BP during those, I am usually too weak during these episodes I can't use my hands, arms, or legs very well. If i move my arms then my hand just flops. it's very strange. But I will alert my Hubby to take my BP next time this happens. it's been alot more in the evening times, I will be wide awake and then just start losing motor skills and go out of it. It takes alot for my hubby to wake me after this has happened. I took my BP yesterday after laying for 10 minutes it was 133/75 with my heart rate too low to read, my BP machine just read LO. so I sat up and took it and my BP was 116/73 and my HR was 40. so I stood to see how much it would change and it went to 94/50 and my HR went to 68 and then i was going to try to keep standing to get a reading after 3 minutes like my doc does and I became very symptomatic with the headache and rushing feeling to my feet, they turn a purplelish color. I started getting too dizzy my HR went above 100 so I sat and it plummeted back down to 45 which i get chestpains when that happens. I had a treadmill test that i lasted a minute on back in October. My HR laying was 40 sitting was 100 and just standing on the treadmill going slow for less than a minute spiked to 160 and i almost fainted so they ended it. I do appreciate the help, and advice. I found a chart on dynakids for taking BP and HR laying and standing and to take them in the increments of every min for about 5. is that what you do? if not I am all ears on how to do this to at least have a log for my next visit next month at the Cardio. Thank a bunch

Doozlygirl, this symptom has really just gotten worst since this last episode I had. I don't have any triggers, my heart rate stays at around 45 when resting, and so i just get so weak that i just pass out wherever I am, I used to just try and get up early and just never sit down so I could get things done, because if i sit down my HR would drop and i would pass out , but now I can't do that since I have gotten worst I have to sit alot during the day because my HR goes to high when standing to do simple things. Sitting my heart rate is 40-50 BPM i stand and it jumps to over 100 and just keeps climbing if i do anything, it gets up to 170 if i keep going, especially when I am doing dishes. so besides just my bradycardia i can't think of anything else that would cause mine, I haven't been diagnosed "POTS" I haven't had much testing from a qualified doctor. I just know resting my hr is too low and standing my hr is too high and causes me to faint either way. this last time last wednesday my HR was low and i was weak and started having my neck, head, and shoulder pain so I got up to leave church and almost passed out right before sitting in a chair while my husband got the kiddos, then i was ok just weak i was talking to one of the pastors and drank some water and then collapsed my HR dropped too low and i fainted and quit breathing temporarily. since then my symptoms are exaggerated. Sorry I hope i didn't scare anyone but seeing this is a forum where this happens I hope i didn't offend anyone. so, I don't know about triggers but I don't understand much about this myself, I have had all of these symptoms some since birth and others started at 6 and others at 12. I would think however that it is just your low HR, because thats how it is with me, My respirations drop because it doesn't seem like i need to breathe much and i just drift off. sorry I hope this helps I am just as if not more confused than you.

Wow, I have these as well. I have them on and off I have had them everyday for the past week until today. I would wake up get my baby her cup and after wards get her back to sleep, take my Florinef and have to go back to bed and will just put my oldest who is asleep, in bed with me with the door closed and will passout and be out for about 3 hours lol or until my daughter has jumped on me enough to get me aroused to get up, but it takes alot i'm like you I can hear everything but can't move, the times I do actually get up I have a migraine and my heartrate is high and bp low. I agree with lemons it is always better for me if i can, to just go to bed.