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Showing results for tags 'starting to look at MCAD'.
Hi all, I see many of us have been looking at mast cells as a possible trigger for our screwed up autonomic nervous systems. I've had prominent food and medication sensitivities and random episodes of anaphylaxis years ago(requiring epi/ambulance ride, etc), but these issues have resurfaced. Once I looked up the clinical definition of anaphylaxis, I realized that all it takes is one skin reaction(like flushing, hives, itching) and a second organ system involved, ie GI (vomiting, big "D", abdominal pain) or cardiovascular involvement (like orthostatic hypotension or even hypertension), and then angioadema and swelling are listed. This is making me reevaluate my current episodes. I am nearly continually flushing, with near daily episodes of GI evacuation, so been adding antihistamines and can see a difference. I see my autonomic neuro in a few weeks. and my derm two weeks later. Here is my big question for today. Has anyone experienced forced sleep, where it feels like you have been given sedation? I still can't place this one major symtoms. Is it mast cell related or OH related, or something else? Today, I had lunch with a friend in a local mexican restaurant that uses only fresh ingredients. BTW, I've never reacted to fresh mexican food. The 2 hour lunch went well. I then came home then felt doozly, which is our family word for I HAD to go lie down. By that time I had chills, the inner core type, blurry vision, then my eyes got really heavy, where I couldn't keep them up any longer. It feels like I am getting sedation, then I am out cold for several hours. I heard the phone ring twice, but I am unable to come to. I awoke 3 1/2 hours later, somewhat refreshed and feeling fine. Sometimes I get these episodes right after I wake in the morning and have to go back to bed for several hours. I've have had these episodes for five years, and had to work later in the day to cover the time off of work. Haven't been able to work in 2 years . The only trigger I can possibly come up with today is perfume from woman in next booth, but I get these same episodes without exposure to perfume. Can anyone relate to this experience and have you figured out what triggers them? Thanks for your responses. Lyn