misstraci

RELAX 86??? Did anything ever become of the high positive ANA? Just curious. Thanks.

I didn't vote because nothing has seemed to help me and I refuse to take midodrine b/c I'm scared and I hear bad things. About to try lexapro again 5mg, very small dose, I wonder if it will even do anything.

I like your letter! this is fun, we should all write hate mail to said "POTS"

I see how it could be good therapy. getting all out there and off your chest.

Thank you Rich for doing such in debth research and sharing it with us!!! I appreciate you and the rest who research and then share the information or theories they may have. Your theory makes sense. What would be a treatment plan do you think?

I'm not sure if this is the same thing (neuropathy/biopsies/etc) but I had a nerve study where they shocked my legs and arms and put needles as well. It showed a little abnormality but nothing ever became of it.

Thanks again!

I was 24 when it was removed but the issues lingered and couldn't be detected for years. I had constant nausea throughout high school and test after test after test (sounds familiar to where i am now) revealed nothing. In the end, it was my gallbladder not functioning (squeezing as it was explained to me). I have a hiatal hernia and paptic ulcer (not caused by hpylori) as well as delayed gastric emptying.

you're right though Achillies..... dysautonomia/POTS makes it feel extra, extra terrible.

How are you feeling today??? Hope you are gradually getting better and not worse.

I'm sorry you don't feel well, I don't know in names what to call it but it sounds just like a cold that should run it's course. I was sick for an entire week last week with similar symptoms except I had the worst raw, sore throat of my life, even worse than when I had mono ten years ago. I was crying to swallow it hurt so bad. Chest and nose congestion, all of it. I'm better now, yours should run through your system and then feel well (or POTS well). Like others' say, drink plenty of fluids!!!!

Kid germs are everywhere I tell you, whether you have kids or not, they are swarming the market, library, you name it!!!

Great poll, can't wait to see once more people vote!!!

So proud and excited for you!! Hoping things continue to improve and stay well for you. This is encouraging for others and other conditions as well.

oh gosh, sorry for your pain and current issues. I've never experienced this but have heard of it. I wanted to say sorry and hope you feel better. Did they say what could have caused it or if it heals with medicine and gets well? I'm glad they took you seriously, hope you feel better!!!

1. Just breathe!! because sometimes I forget to. deep, relaxed breathing is so beneficial for so many things. focusing on breathe helps calm our nervous systems. slow heartrate/blood pressure, etc.

2. ER doctors are rude, unknowledgable, and uncaring!!!

3. It's ok to ask others for help.

not sure what's going on or have any suggestions, just wanted to say that I get exactly what you described, not for hours on end but i'll "fall asleep" and immediately awake which feels like my body jumps or something and my HR feels crazy fast, it's quite scary. Not sure if it's the same as you but it sounds similar.

It's just worded differently but here is what she's asking:

1. has your sex drive increased or decreased

2. have you had vaginal dryness

3. has your ability to orgasm increased or decreased

Seattle, that is a good idea!

I never noticed your writing at the bottom, I think it's funny, I can definitely relate to the entire thing.

I don't know if you can say on here but what is your forum that you run, if you don't mind me asking? just curious if it was a health related one.

I'm sorry Seattle. I wish someone would move the process for you more quickly. I've been to the ER about seven times over the past three years and each time, I am treated as if I am a hypochondriac. It's very belittling, Never been admitted, just given fluids and sent home feeling miserable as ever. you have no idea how much I dispise the medical community right now. I've had a basic work up by my GP when I first got sick which included lots of blood, an echo, ekg, mri and everyone who sees this thereafter says "you've had a good work up, there's nothing else we can really do". I am currently at a point where I am just beside myself. I'm angry and just feel like there is something there that someone is missing. I don't feel like I have 'just POTS', and if it is, something is causing it, but what...... I hope you are able to get more cardiac tests done. I was supposed to have a nuclear stress test but my insurance denied it. I just went to a new neurologist and had an eeg and called to get my results and she said they can't give them over the phone, long story short, i go in yesterday only to pay $40 for 15 minutes of his time for him to tell me the test was normal and reiterate I should drink plenty of fluids, ***. I am going in circles, everyone is disbelieving, and meanwhile, I feel like I'm dying and no one can see it, feel it, or understand what I'm going through. It's like being autistic and having this own little world that no one can touch/understand.

I've never heard of the China study nor have I watched/read Forks over Knives. I have read "chocolate covered katie blog" and have used multiple recipes. all very good!!! My boyfriend has been doing a vegan diet for many months now and has lost a tremendous amount of weight. I'm not sure if he "feels" better or good, he never felt "bad" to begin with. I don't want to give up cheese, so, I haven't tried it myself. I was a vegetarian for seven years so doing without meat is just fine. i have a very bad addiction to sugar, more specifically chocolate, I would like to try a diet that is mainly fruit/vegetable and the more raw the better. I get so frustrated from not feeling good that I need that comfort of food that you hear about. it's very true. If I'm mad and frustrated, It will only make me more mad and frustrated to sit there eating salad

Good luck, can't wait to hear about your experience. Hope it's positive with positives outcomes!!!

I'm not sure about specifics to test for but I wanted to ask how your appointment went?? Congrats on an upcoming wedding as well. I hope you feel better soon and especially before your wedding!!!

Bananas, your mom is right, that's terrible and yeah we actually feel like that all day!!!

haha, I can't help myself. I always laugh because you take one medication to relieve one symptom but in turn you get a whole bunch more symptoms. it's a pick your poison game.

Seattle..... I hope you're feeling better today!!!

It says, diarehha, stomach cramps, vomiting, nausea, headachae, earache, runny nose, stuffy nose, low blood pressure, high blood pressure, fatigue, drowsiness, muscle cramps, vision disturbance, back pain, arm pain, whole body pain, illusions, attitude change, appetite change, sexual disturbance, can't pee, pee a lot, insomnia, ...........

Sorry that happened. I know it had to have been very scary. Do you think it has anything to do with you just starting the zoloft?

They aren't specifically for POTS, more specifically for cancer and other chronic illness but I still suggest Dr Bernie Siegels' books, all of them are great. check him out

http://berniesiegelmd.com/

True, True, and wonderful!!

Hey Seattle. Good luck with the meds. I tried zoloft back in high school and it made me really nauseated but I didn't even weigh 100lbs yet. It's highly likely that the amount of meds were too much for my body. Let us know how you do with them, sorry the appt was mediocre. I feel like that too, I just want to humor them sometimes, let them get their way and prove it's not "that", whatever it is they are suspecting or assuming. I'm about to try lexapro again.

Thanks for the link Rama!

I'm sorry you feel so bad you can't/shouldn't drive. I haven't driven in over a year, it's killing me and wearing down relationships of those around me having to always depend upon others to get me places. My doctor did not tell me not to drive, I just know that I can barely function as it is and that driving would be a disaster. I don't trust myself in the car, not alone and definitely not with my kids. When I told me current/new neurologist that I wasn't driving and hadn't been, he acted weird and kept questioning why. I thought it was obvious that I just said I'm extremely lightheaded!!! He should agree and not want me on the road too.