L4UR3N

You could try wearing full length stockings or even just alternating your days between what lenth you are wearing to give your skin a break. I found that the full length stockings help a lot more, but they are a little hot for summer

I know this was posted a long time ago but I just thought I would chime in. I have extremely dry eyes (from sjogrens) and got punctal plugs the beginning of this year. The area AMAZING!!!!! They have brought so much relief I cannot even beging to describe it. I still need to use eye drops, but at least now my eyes do not feel like they are going to dry up and fall out of my head!

The insertion was really the only part that was a little uncomfortable, but the end result is worth every second you spend in that chair!

I hope this helps you or anyone else considering them .

When they went in to do the EP study they were able to create the SVT but could not locate where it was coming from. He ended up spending 6 hours looking before calling it quits. I have not had another one done (I've been told it can take several attempts before they find it). I'm not sure how I feel about getting it done to be honest. I have heard many people with similar stories to yours and it frightens me to think that I could end up worse off than I am now. I could be 100% wrong, but I have to wonder if the dysautonomia doesnt occur because they irritate/manipulate the nerves from your SNS while they are in there. There was one article I read that said that dysautonomia has also occurred in women after they get breast implants due to the disruption of the Sympathetic and Parasympathetic nerves during the surgery. I wouldnt see why the heart would be any different .

This is so interesting because I have long noticed that eating soy (which has estrogen effects) during the luteal phase of my cycle improves my symptoms GREATLY. Never understood why, but now it makes more sense

Well, with the first article, they had no definitive conclusion because the sample (number of women) was too small and they could only follow it for one month. Basically, the researchers observed that if you use a drug to impair norepinephrine transport in young healthy women their autonomic and cardiovascular responses to the standard 4 ANS tests changes over the course of our month. Higher estrogen levels act as a protective mechanism and the sudden drop during menstruation causes a worsening POTS-like response. They don't know why yet. It was actually a good try at explaining why our symptoms are worse when we are right before our periods.

I haven't gotten to the rest yet.

Ramakentesh, what is your collective take on NET deficiency? Does the theory still hold water or are there pieces of that puzzle still missing?

Two things came to mind when I read your post. One is that you had been regularly exercising and had to abruptly stop. This, along with beta blockers can cause several of the symptoms that you are describing. How long have you been on the same beta blocker? Have they considered trying a different one? I'm glad to hear that you are starting to be able to exercise again . I think this will only help you!

Also, have you always had supine hypertension? Your blood pressure when you are standing up is actually very healthy and normal, but you should NOT have hypertension while lying down. This puts you at risk for a variety of things including ventricular hypertrophy--enlarged heart--which can cause further arrhythmias.

Have they evaluated you on an event recorder? (monitor worn for a month). The "head rushes" you are describing could easily be from premature ventricular contractions (PVC's). I experience the same feeling when I get PVC's, and beta blockers actually increased them (although usually for other people this is not the case).

I really feel your pain because I am dealing with arrhythmias in addition to POTS also. I had an EP study but they did not end up doing an ablation (which I have mixed feelings about), so I still have my SVT. I hope that things will continue to improve for you and that they will be able to find the right medications to help you! I personally felt HORRIBLE on beta blockers, but I also have MCA and apparently cannot tolerate them. I know that for the normal person beta blockers can take a while to get used to (about a month in most cases). If you have been on the same beta blocker for longer than that and still have horrible symptoms, I would mention it to your cardiologist because he may he able to switch you to something more agreeable .

I built up to 4 cups over several years. Started drinking coffee in 7th grade because I didnt want to be so tall (they predicted 6 foot, I'm 5'9 so I guess it worked ). When I started having all my Pots problems my cardiologist told me to cut out all caffeine, so I did. Honestly my symptoms are worse now than when I drank 4 cups, although it would be difficult to know if this is related to caffeine or to time. I know my head certainly feels better with a little java

Elevated levels of either Epinephrine or Norepinephrine alone can cause polyuria.

Very true!

After drinking 4 cups of coffee a day for about 5 years, I weaned myself off of it only to have migraines every single day for over 6 months. I now eat so much chocolate that it probably counts as 2 cups of coffee, lol .