jbenz1772

Hi, I just wanted to say good luck to you Saturday. I just had the test last Tuesday along with the Tilt Table and the Qsart. The test itself really isn't so bad, not painful. I reached temperature in less than 30 min. They come in and check your temp every 10 min and do a body check to look for color change in the orange powder. The heat does get long and exhausting, just try to meditate and take yourself away in your mind. Afterwards I was really exhausted and it seemed to increase my symptoms for the following week. Drink lots of water. Let us know how you did, Jennifer

I've been bruising a lot on the right side of my body. But I think that's because of the migraines that I get and it affects the vision in my right eye. My Dr. took note of that. Good luck, Jennifer

I had many cysts on my ovaries that made my body think I was pregnant, so I wouldn't ovulate. My Dr. put me on clomid and I was pregnant after 3 months on the drug. After the first baby(live boy), I miscarried a second, then didn't have a problem getting pregnant with my 2nd (live boy, with severe cardiac defect), I miscarried again after 4yrs. Then again no problem with my 3rd(live girl), but was put on progesterone. So 3 live babies and 2 miscarries. Not sure if all of that was POTS related or not. Jennifer

My symptoms starting picking up terribly last week. Feel like I was hit by a truck. Out of breath just taking a shower or eating. I started getting cold symptoms on Sunday, but I was also starting my cycle on Sat(which also seems to be not normal this time) Wondering what happens to your symptoms when you get a cold? or your cycle? thanks, Jennifer

My symptoms starting picking up terribly last week. Feel like I was hit by a truck. Out of breath just taking a shower or eating. I started getting cold symptoms on Sunday, but I was also starting my cycle on Sat(which also seems to be not normal this time) Wondering what happens to your symptoms when you get a cold? or your cycle? thanks, Jennifer

Thank you to everyone for making me feel welcome. I have tried to increase me fluids. It seems like the symptoms have actually started to increase again just since the "hot room" thermoregulatory test. I've had some extra stress and a cold too. But my right arm feels like "restless arm" syndrome. LOL no other way to describe it. And the feeling like I had a two hour workout just taking a shower.(out of breath and need to sit down to recover). Jen

Hi all! Going to try to keep this short. Last March started with left chest pain that wrapped around and under my shoulder blade Hand and foot numbness and migraine aura. after about 3 weeks subsided but having frequent muscle twitching especially thigh, upper arm and eye. And shortness of breath when walking to parked car or up the stairs. Then in August chest pain started Numbness and tingling, brain fog, migraine aura, mixing of words, buzzing of foot and progressed to feeling of icy hot put on patches of my body. Want to sit once I get to top of stairs. (side note: for 6 yrs have had near fainting episodes while cheering for my sons football games, at one point almost called 911) My primary sent me to the ER and Dr. there mentioned MS, then went to first neurologist who after negative MRI's put me on Cymbalta for the neuropathies and said he didn't have a diagnosis nor were there any other tests to be done. Then in early Dec my daughter was competing state gymnastics, of course I was cheering and had near fainting. The next day was cleaning(makes me feel really bad), putting up Christmas decor and cooking when I passed out in Kitchen. Time to see new neurologist. LOVE HER: She right away told me a few different possibilities and set up testing that day and another round of tests: Holter monitor: 11hrs 46 min of tachycardia in 48hrs, incl at 3am when got up to go to the bathroom Tilt table: went from 61bpm laying to over 100bpm upon tilt as well as chest pain, dizziness and flushing (tech could tell it was coming before I felt it) Quant sweat: right arm didn't sweat at all Thermoregulatory Sweat: No sweating at 10min, or 20 min, reached 38 celcius in 30 min and only small sweat on wrists Had the tilt table and sweat tests on Tuesday and increase in numbness and tingling in right foot, leg and hand since. My days go up and down can have several okay days in a row, but still feel like crap after climbing stairs and bending/stooping. Taking the Christmas tree down almost took me down. Just wondering if any of this sounds familiar to you and looking for support and ideas. Thanks, Jennifer