Desiree89
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Posts posted by Desiree89
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I'm not diagnosed with pots, but I have a lot of the symptoms.
If Im standing, my bpm is like 120-170.
And I have alot more symptoms...
If im going for a dx, what kind of doctor do I need to see?
if I talk to my regular doctor and say I need to see a specialist, what kind of specialist does that indicate?
Thanks for any answer.
Im not giving up!
Sincerely Ida D.
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Thanks everybody!
It really helps me to know im not alone.
Like I said before, I dont have any diagnose.
- If im going for a dx, what kind of doctor do I need to see?
if I talk to my regular doctor and say I need to see a specialist, what kind of specialist does that indicate?
Thanks alot for all help!
Ida
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Thanks for the respond Tilly
I read about IST, somethings fits, something don't. my resting heart is about 50-60bpm - now and before I started the medication. But before the medication I could have days with resting heart at 90-100 bmp.
When I have more energy, I will contact my cardiologist and demand investigation on POTS, IST & Phaechromocyta...
Does anybody now where to find a good overview of the differential diagnosis to POTS?
-ida
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Hi everybody,
Im a norwegian/danish girl that got all lot of POTS symptoms. I don't know how long I've been having them. When a was a baby I had some sleeping-difficulties(still today), and i did't wake up early in the mornings. when I got angry I didn't remember to breath(my father tok me to the emergency alot because I got so blue and he couldn't get any respond from me) - I was a couple of months. when I got older (and still today) I couldn't cry without hyperventilate, and I fainted( I must have been a terrible baby/kid:). I had anemia when I was 3yrs. I have had alot of stomach-pain, and still today,joints thats hurts and get a little swollen ...
I'm thinking that its maybe connected with POTS/dysautonomia - what do you think?
When I was 13-14 yrs old I startet to have PVC and Reentry nonsustained ventricular tachycardia(VT) from my right ventricle, HR: 210, for about 15 sec, sometimes longer. also got "slow VT", also called AIVR, and bradycardia I starting to faint/syncopes, more dyzzi, tired, headache, low BP, sometimes a little high. I forget to eat because I didn't felt hungry, but I got nausea and vommits a little. At this time my doctor just told me that PVC was normal, I didn't got through
any tests. But when I was 16, cardiologist recognized a VT on the EKG, but my primary doctor forgot to tell me about it, and I didn't get further tests.
When I was 19 yrs old I felt tired all the time, still working and school, I had a lot of syncopes, and more frequent arrhythmia. But at this time I thought I'd just had some PVC. but I was wrong. my mother tok me to the emergency because I was complaining that I couldn't sleep because mye heart was very irregulare. at the emergency they told me that I needed a ambulance to a bigger hospital. when I got there they told me that I had reentry V-tachs and AIVR(in 2 hours I got like 20 nonsustained VT.)
they gave me some selo-zok(betablockers), and I felt fine. They didn't allow me to work for 6 months, because they needed to investigate why I got the arrhythmia.
The selo-zok made me more tired, more dizzy, feeling cold all the time, made my heart brady. bpm: 35-50. that made my headache go crazy. then I stopped taking selo-zok, and PVC, VT, and the other heartrytmh was getting annoying again. cardiologist tested my heart, got a little low ejection fraction(50%), but my heart is structually fine. had some late potentials(if somebody understands that, I dont, but somethings about the hearts re- and depolarizing).
because of the arrhythmia I bought a heartwatch/pulsewatch, I recognized that when I stod up I could get a heart rate on 170bpm, dizzy and sweating, and I also got sinustachycardia when I wake up after sleeping. stairs was terrible.
I googled and found POTS. every symptoms makes sense, but not the arrhythmia thats is getting worse, and doctor cant find out why.
I have found some people with POTS and VT, I would like to meet more. Its not normal to have pots and VT? - or?
I got a positiv TTT, but not any diagnosis. Do you think its a pots or something else?
Sorry I wrote a book, but im kind of frustrated because, my new medication(flecainide) doesn't block the arrhythmia and I just restarted my education 2 weeks ago, and again its getting worse.
Looking forward to hear from anybody!!!
Hope my norwegian-danish-english isn't to bad:)
Sincerely Ida D.
What Kind Of Doctor Do I Need To See?
in Dysautonomia Discussion
Posted
Hi radiohfan23.
I'm living in Copenhagen, Denmark. I if remember correct, the nearest physician is located in Holland/Netherland.
I was thinking of what's the correct name of a specialist that can diagnose POTS? - like a cardiologist that diagnoses heartdisease...
I dont think that my cardiologist have heard about POTS...
Thank you so much for your reply!