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Everything posted by Desiree89

  1. Hi radiohfan23. I'm living in Copenhagen, Denmark. I if remember correct, the nearest physician is located in Holland/Netherland. I was thinking of what's the correct name of a specialist that can diagnose POTS? - like a cardiologist that diagnoses heartdisease... I dont think that my cardiologist have heard about POTS... Thank you so much for your reply!
  2. I'm not diagnosed with pots, but I have a lot of the symptoms. If Im standing, my bpm is like 120-170. And I have alot more symptoms... If im going for a dx, what kind of doctor do I need to see? if I talk to my regular doctor and say I need to see a specialist, what kind of specialist does that indicate? Thanks for any answer. Im not giving up! Sincerely Ida D.
  3. Thanks everybody! It really helps me to know im not alone. Like I said before, I dont have any diagnose. - If im going for a dx, what kind of doctor do I need to see? if I talk to my regular doctor and say I need to see a specialist, what kind of specialist does that indicate? Thanks alot for all help! Ida
  4. Thanks for the respond Tilly I read about IST, somethings fits, something don't. my resting heart is about 50-60bpm - now and before I started the medication. But before the medication I could have days with resting heart at 90-100 bmp. When I have more energy, I will contact my cardiologist and demand investigation on POTS, IST & Phaechromocyta... Does anybody now where to find a good overview of the differential diagnosis to POTS? -ida
  5. Hi everybody, Im a norwegian/danish girl that got all lot of POTS symptoms. I don't know how long I've been having them. When a was a baby I had some sleeping-difficulties(still today), and i did't wake up early in the mornings. when I got angry I didn't remember to breath(my father tok me to the emergency alot because I got so blue and he couldn't get any respond from me) - I was a couple of months. when I got older (and still today) I couldn't cry without hyperventilate, and I fainted( I must have been a terrible baby/kid:). I had anemia when I was 3yrs. I have had alot of stomach-pain, and still today,joints thats hurts and get a little swollen ... I'm thinking that its maybe connected with POTS/dysautonomia - what do you think? When I was 13-14 yrs old I startet to have PVC and Reentry nonsustained ventricular tachycardia(VT) from my right ventricle, HR: 210, for about 15 sec, sometimes longer. also got "slow VT", also called AIVR, and bradycardia I starting to faint/syncopes, more dyzzi, tired, headache, low BP, sometimes a little high. I forget to eat because I didn't felt hungry, but I got nausea and vommits a little. At this time my doctor just told me that PVC was normal, I didn't got through any tests. But when I was 16, cardiologist recognized a VT on the EKG, but my primary doctor forgot to tell me about it, and I didn't get further tests. When I was 19 yrs old I felt tired all the time, still working and school, I had a lot of syncopes, and more frequent arrhythmia. But at this time I thought I'd just had some PVC. but I was wrong. my mother tok me to the emergency because I was complaining that I couldn't sleep because mye heart was very irregulare. at the emergency they told me that I needed a ambulance to a bigger hospital. when I got there they told me that I had reentry V-tachs and AIVR(in 2 hours I got like 20 nonsustained VT.) they gave me some selo-zok(betablockers), and I felt fine. They didn't allow me to work for 6 months, because they needed to investigate why I got the arrhythmia. The selo-zok made me more tired, more dizzy, feeling cold all the time, made my heart brady. bpm: 35-50. that made my headache go crazy. then I stopped taking selo-zok, and PVC, VT, and the other heartrytmh was getting annoying again. cardiologist tested my heart, got a little low ejection fraction(50%), but my heart is structually fine. had some late potentials(if somebody understands that, I dont, but somethings about the hearts re- and depolarizing). because of the arrhythmia I bought a heartwatch/pulsewatch, I recognized that when I stod up I could get a heart rate on 170bpm, dizzy and sweating, and I also got sinustachycardia when I wake up after sleeping. stairs was terrible. I googled and found POTS. every symptoms makes sense, but not the arrhythmia thats is getting worse, and doctor cant find out why. I have found some people with POTS and VT, I would like to meet more. Its not normal to have pots and VT? - or? I got a positiv TTT, but not any diagnosis. Do you think its a pots or something else? Sorry I wrote a book, but im kind of frustrated because, my new medication(flecainide) doesn't block the arrhythmia and I just restarted my education 2 weeks ago, and again its getting worse. Looking forward to hear from anybody!!! Hope my norwegian-danish-english isn't to bad:) Sincerely Ida D.
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