jonathanireland

So my normal doctor is out of the country, so i made an appointment to see another doctor at his practice. She was so lovely! i asked her to prescribe me a wheelchair which she did, she even asked me was there anything else i wanted or needed just to ask. she also signed a form for me to avail of the disabled parking card. she was so nice.

you take it easy girly and kick up those legs it will do ya the best in the world. dont be worrying what caused it if it was a panic attack worrying even more now as to what caused it cant be good for you. we all get to a stage of sheer panic now and then and obviously yours was with your childrens things and having them ready n washed so just remember that its normal to panic and sometimes the body has a funny way with dealing with stress and also understand that theres nothing to worry about in future just take a deep breath sit down and just tell your self ******* THIS IS SO NOT WORTH A POTS/PANIC ATTACK****** Rest up, get well!

Aww really hope you feel better soon. It certainly sounds like a panic attack to me hun, your pulse and BP certainly were not high enought for a pots flare up well only in my opinion that is, just because when mine flares up my pulse could shoot up to about 160 beats per minute, and u said yourself that you started to think too much during it maybe you should mention it to your doctor Get well soon

ya not really sure how it works over here in uk and ireland iv left a message for my pots doc to prescribe me one so shes on holiday untill oct 13th so i wont know until then

I suggested the possibility of a wheelchair to my partner who basically laughed in my face, probably because iv been ok for the last while only having a few minor flare ups but nothing causing a syncope event. but what i was trying to explain to him is that i want to plan for the future flare up's be ready ya know. anyways il just have to get on with it. kinda disappointed now

Thats though! would you not ask your doctor to prescribe you one if you feel your quality of life would benifit from it??????

Hey everyone hope all is well. I am just wondering if anyone here uses a wheelchair for their POTS Symptoms or have they been "prescribed" the use of one? Thanks for all the help. Jonathan From Ireland. :-)

hey i tried looking up some info on the drug Armour but there wasnt much on it. But I have come to the conclusion that if u are taking a drug for ur thyroid then the increasing tachycardia may be due to irregular levels on hormones which ur hormone is producing, and maybe it could also be the drug its self causing an increase in heart rate but the only way this can be confirmed is by a doctor. to give ur self an idea as with the previous reply, let us know if ur heart rate increases on standing from a lying down position lie down for about 5-10 mins give ur Heart rate a chance to settle then check ur HR over a minute or 15minx4 and then take ur pulse as soon as u stand a home blood pressure device might be of some assistance in aiding ur diagnosis well not so much a diagnosis but maybe just to arm u with some evidence. All the best, Jonathan.

goldicedance and FLOP! thank you so so so much for yere wonderful posts i really got bag loads of information from then, hey flop cant believe you've met my specialist before i have hahahaha. I emailed her before reharding octreotide and it is something she is familiar with so i see ner the 2nd of november so fingers crossed shell treat me with it just too see has it an effect on my symptoms. Thanks so much again guys ur so great. god bless. xxx

I suppose chick if you want a simple answer. . . . . Lying down will relief your hypertension and tachycardia, but i dont suppose we can all lied down for ever. But now a realistic answer, on my tilt my bp started off normal then went hypertensive and tachycaria occured and then a few mins later went very hypotensive and bradycardia occured so i think its different for everyone. but yes anti-hypertensives will lower blood pressure get well soon

Hey, Maybe your doctor just wants to get an experts opinion on the problem in hand, maybe even for some possible treatments. A hole in the heart is a congenital heart defect and can effect a person depending on the location of the hole. some of the symptoms associated with this defect are infact palpitations and ofcourse hypertension mainly because of the fact that the heart has to try that little bit harder to pump sufficient oxygenated blood around the body, due to blood that has been oxygenated passing through the hole into the other side of the heart mixing with unoxygenated blood causing the blood to be pumped back through the lungs a second time for oxygenation to occur this being the reasons symptoms occur in the first place. so maybe you need to decide is it POTS you have or the effects of your cognenital heart defect. All the best hun get well soon :-)

pat to answer your question em well i dont really know on my second tilt my blood pressure and pulse went from normal range 120/80 Pulse/78 to 190/140 Pulse/120 and then 3 minutes later everything dropped to 70/40 Pulse 38 but i didnt have a seizure but i started to feel then that i was just about to get one when the doctor tilted me back flat as i said to her i didnt want her to make me have one mainly because i didnt wanna feel s**t for the whole day. Corina, if you wouldnt mind sending me on some info that would be so great im new to this place so i dont even know how to send private messages yet but il mess around with this for a while and eventually il probably get my email to you ur a star thanks chick. I hope you find this drug helpful as for me its the only option. And hey everyone i got an appointment today with apparently one of the worlds "best" syncope doctors who is on my doorstep i quote, Prof Rose Anne Kenny november 2nd of this year and she is familiar with using this Drug Octreotide so wooohooo finally get something sorted. Thanks everyone for all yer great help

Thanks guys for all your comments. Ya see my problem is that maybe only 3 doctors in Ireland who can Diagnose this condition and most dont even know what POTS is my cardio said he had never seen anything like it and hes no spring chicken lol. So i guess i may have to travel to the UK in order to find a doctor who would be willing to prescribe this drug. I also had myself convinced one day that i would travel to US to see doctor R. Hoeldtke Who treats his POTS patients with this drug. Im only 19 and i have no job or college because of the constant daily fatigue and all the other things that come with POTS. I am having SOME reilf with the MIDODRINE so im guessing the OCTREOTIDE might be the best option for me

Hey my name is Jonathan im 19 years and Im from Ireland. I diagnosed with POTS 3 years ago and having convulsive syncope events for over 6 years now. Iv gone through the usual Beta- Blockers, Flurnef, Midodrine. at the moment im on propranolol and midodrine which i am getting some releif from. So my Question is the drug OCTREOTIDE (SONDASTATIN) I have been reading alot about this drug and it seems to prove very sucessful in the treatment of Orthostatic Intolerance, and postural tachycardia along with postprandial hypotension all of which i experience on a daily basis. my cardio and family doc over here has never heard of the drug and my pots specialist has never used it either so im kinda stuck as what to do. I would be very greatful for any Information. Also I would be willing to travel to another country for the right treatment if i have too. Jonathan xxx

Hey, As far as i know Octreotide (Sandostatin) is a good treatment for both POTs and treats Sever Flushing as a side effect. all the best with college, Jonathan