TheLivingDead

in the begining of my pots (june2009), randomly my eyes would shake back and forth in my skull and they would seem to go different directions irratically. only for about 15 sec. well now after almost a year of it not happening its back, but not as bad. a anyone else familiar with this issue? side note:i had a concussion 12 years ago while playing high school football and right after impact i had this same eye thing.

sorry about your day. i havent been able to see any doctors since my diagnosis of POTS. i will be starting soon and im gonna slap someone if they try that running around BS. i cant stand that they spend so much money and time of thier life to become a doctor just to pass it off every time becuase they dont know ****.

so instead of self medicating anymore for this pain in the butt litterally. i went to the docts today. he told me to use 'magnesium citrate' its over the counter clear stuff you drink. he told me i would have alot of stomach pain from this stuff. yay i cant wait.

it seems most doctors want to do anything they can to say you dont have POTS and nothing to tell you what you do have. is it bedcause they are to lazy to go through all the work it takes to pinpoint the problem and work with a pots patient? it seems so for me. in the begining 5-6 months of having POTS i was very bad almost everytime i stood up it was bad to the point of being outta breath and almost passing out just from standing. but in the last few months i dont have the bp drop or light headedness or hard heartbeating to often. it mabey a 15-20% of the time. so im guessing they will say i dont have POTS now, but yet i still suffer from all of the symptoms. my POTS seems to affect diff things at diff times. one week ill get palipatations, the next numbness in my extremidies, the next head foggyness. i get all kinds of symptoms and alot at the same time but i can remember it like "oh that was the week i had alot of shakes(tremulousness) and that was the week where i wasnt sleeping cause of my numb arms and legs,ect...

so i took the dulcolax and not much result. so i opted to not continue that and go straight to the enema. ive used 1 and not much help. ill try another in a few hours. if this dont work should i try suppositories

i have been like that. i stare off into the distance. its like i just go blank or go on standby. its wierd. once i had it really bad and ended up in the hospital. i felt like a 'vegitable'.

so i guess im getting that post-virus pluggage

i got a 24hr stomach bug last wednesday and thursday. i woke up puking and diareah*. about 1 day later i was feeling aton better but i was now really foggy in the head and i havent been able to have a bowel movment. well the fog has died down alot after about 6 days but i still cant BM except alittle really soft amount i mean a couple of tablespoons mabey a few times since the sickness. im still eating normal but its not coming out so i assume that the pain in my stomach will start soon. any ideas of what i should do? i bought some deulcolax. i wanted something that wouldnt hit me like a ton of crap..haha. should this work? or anyone have this same issue after the stomach bug. im asking because i read the other bowel thread and it has some info but it seemed that it got real bad and enimas were the answer most of the time. so i guess my question is should i skip this small time stuff i got and get the enima right away so that i dont go down that painful road. sorry if im seem to be rambling my fog messes with my concentration

no worries. thank you

thanks for the kind words. i dont focus on it near as much as i did before finding this site. just some days are hard. this site really was life changing for me because i was so scared before especially when they were saying it was in my head and i knew it wasnt. but thanks again

great thread, especially the video

im going to be tested im in the process of getting a new state health insurance and a doctor to actually start searching for a cause. my first post was just in reference to myself having alot of mental stress due to not knowing what it my be yet(if ever) and i assume the worst. i appreciate the advice. i didnt mean to whine its just easier to type out how im feeling and to have someone understand.

so ive had this POTS since june 09 and i havent had any test except what they did which wasnt much to diagnos me with POTS. so very offten i get very stressed and scared that i might die. i know that there are many things that cause POTS. but without any tests my mind wanders. do you think i have to worry so much without tests being done yet or are the odds good that what my cause is, is not life threatening. i have read somewhere that about 50% of people who get POTS get it due to a viral infection. and that in most cases it clears up after a few years. i dont mean to be a whine *** but i just get so scared sometimes. it has taken over my life, almost my every thought. i hate it.

that *****. showers usually make me feel better.

thanks and yeah the name does sum it up well for most of my days

no i didnt have to monitor. but my situation was that i keet getting symptoms and going the to ER they wouldnt know what was wrong and send me home. this happened about 9 times until they admitted me and they tested me for 5 days and still wernt sure what it was until the TTT.

thanks for the response. im not on any meds yet. i lived in florida(us) when it started and where i was diagnosed. but i had no health insurance at either of those points so i was gettinng the minimum of help. until i was diagnosed at the tampabay heart institute. i went into the ER there and the doc finally thought i should be admitted after the 9th time of being there in 5 months. thats when i was diagnosed with pots and was to follow up with there docs but i had no insurance. i had to move to massachusetts(us) to get the state health care which was very easy to get compared to floridas. so now im here and waiting to recieve dr "treatment". before i left florida they put me on florinef but it masde my throat was closing. so i stopped

wow the male to female ratio is amazing

my symptoms also fluctuate. im sure this is what is supposed to happen with pots cause almost everyone on here has said that they have good and bad days. i hate that i have,for example 2 good days 8 bad days 2 good days 6 bad days.

well it has been so nice to find this site. it all started in june of 09. just woke up one day and my world as i knew it was gone and has been ever since. after repeated hospital visits and a ton of bs from doctors i was diagnosed with pots in dec. 09 after a ttt. and what is with all these docs thinking im just crazy or its in my head? as if im just imagining my world crumbling before me....... i must have watched to many movies huh. well i found this site shortly after i was diagnosed and it took alot of fear out of my life. i would like to thank all of you who dont think its just all in my head anyways ive had a few questions i cant find info on. first the flu with pots....i got the flu just 4 days ago, it was a 24 hr stomach bug. oh gosh it was the worst. my question is, since the flu has been gone i feel real wierd in my head as far as being like i cant think properly and my thought process is just skewed. i have had confusion, foggyness, lack of concentration before this but now it seems i cant handle stress without seeming to go bonkers like im nuts. has anyone had this happen and does it fade as with the other spontanious issues do after awhile? second is sex. sometimes its not so bad but other times i cant bearly participate(like most things i do) alsoit seems to give me ED(erectile dysfuntion) sometimes. im sure this has to do with the blood flow problems im expirencing throught my body but i havent found anything about it. third has anyone had a problem with numbness in there legs and arms when sleeping. i dont mean the slight numbness and tingling that i always seem to get. but severe numbness like i cant even feel my arms or legs. well again thanks to those on this site for putting my mind at ease. im not the only one who is seemingly helpless.