miranda

Txpots, It is Interesting that you have been prescribed this training from the doctors ,

I read about it online and decided to give it a go. The first time I did I was wearing compression stockings ,lol. (I wondered why I did so well).

Last night without the stockings I lasted 15 mins , came over really faint and sick , got down on the floor and my heart was racing fast. My feet also had lots of pins and needles .

Your method sounds more technical than mine , I just stand with my feet 7 inches from the wall and lean back onto my shoulders , I might give the cushion idea a go.

teachr4k , I would be interested to know what therapy they give your daughter , dizziness is a big problem of mine.

thanks for the replys

Does anyone do this ?

I have for few days and its tough , nearly passed out.

oh simmy i am SO sorry you are suffering like this,

if its a really bad day , please do not stand up and put your self through that,

I just hope the disability attorney is shocked as much as I am !

(((hugs))) and support.

oh I see , I am feeling a bit concerned now because my normal heart rate is 50 - 58

but when I have a episode , I cant feel my heart at all ....

its like everything goes silent.

I get breathless , sweaty , dizzy , sickly , shakey and faint.

My gut instinct tells me my heart slows down which is worrying , my fathers family all suffer with heart problems and I have 3 young cousins in their 20s who have pacemakers and heart bypass surgery.

Are these things genetic ?

I get my monitor in 11 days time.

I spoke to my neuro today and she wants me to wear a event monitor to catch my heart rate when having one of my near syncope or syncope episodes.

She said she needs to know if its tachy or brachy.

But I didnt ask why ? why would she need to know this ?

Do you know if you are tachy or brachy , whats the point in knowing ?

All I know is, I feel like I am dying when having a episode.

I have this too , mines a brown colour and some days it looks worse than others.

I read its common in addisons disease (I think) but my cortisol test was ok.

my neuro tells me to take ibuprofen before I go shopping , it does seem to help but I worry about taking it daily for life.

Has anyone actually done reading of their blood pressure before and after taking it ?

I have found this site on ebay and the compression pants are alot cheaper than the shops here ,

BUT the sizes make no sence to me , I am a uk size 12 - 14 and think the sizes on here might be

American ?

http://cgi.ebay.co.uk/womens-compression-s...=item6fc253e028

Can anyone help me out please.

Thank you for the ideas , I did have some prescribed by my gp and they were so uncomfortable and kept rolling down my leg. So I tried a suspender belt which felt so uncomfortable.

As its now summer , today I have a pair of white linen trousers on (pants)

and want to wear my open sandels , its so diffiuclt knowing what to wear with it.

Hi , I am looking for some compression tights for my orthostatic hypotention ,

so wonder if anyone can recommend any suitable for this.

why do they suggest strengthing the abs ? does this help with low blood pressure issues ?

thanks , I will try to find them.

Last night I made Liquorice Tea and it tastes disgusting ,lol.

Can someone tell me what sort of Liquorice I should take for this purpose please.

I purchased some root and chewing on it hurts my teeth , what sort should I buy ?

oh no took a tiny bit of the pill half an hour ago and feel so sick again,

I now know its the pill

I tried the Liquorice with no luck , strange how it helps others.

I took a tiny tiny dose last night for the first time and half an hour later I felt

so so sick. So I stood up from my bed and my head throbbed alot , so I feel it was a migraine and not the pill.

Has anyone else felt sick after taking this pill ?

I am going to try it again tonight but feel concerned.

I was told to raise my bed by 4 - 6 inches and I have found it comfortable , I seem to be having some good days now , I dont know its early days yet but worth a try . I am sure I read it takes a long time to work ie: months instead of days.

I dont usually drink lots before bed because I would need the toilet all night.

However last night I was really very thirsty and drunk 4 glasses of fluids just before bed.

I woke this morning and had a NORMAL day , no dizziness , no palpatations, just Normal.

So this has got me thinking , I know I am supposed to increase my fluids but maybe the most important

time to increase the fluids is just before bed , so we dont dehydrate overnight .

Any thoughts on this ?

Hi, I posted about this subject a few weeks ago,

I have seen some improvements since raising the head of my bed by 6 inches ,

I believe it takes some time to work and read someones elses post who claimed it cured her orthostatic hypotention , so its worth a try !

sorry this has happened to you , I have always been a sensitive person and cared too much what people think all the time , but over the years I realised most people do not care how I feel, infact only 2 weeks ago a friend of mine complained how she always had to call for me at my door and how I never call for her , yet Ive told her I have orthostatic hypotention and NMH and find being up right difficult.

Honestly , we need to be thick skinned with these problems - I have got to the point where I dont care what people think anymore , two fingers in the air attitude is the only way for me.

Chaos , you have taken my breath away with your description of feeling drunk , and tipping over when turning corners - omg thats me !!! You are the first person to describe this to me and I was always told this sensation is caused by my migraines. Now I think the low blood pressure is the cause of all these feelings.

Thank you so much x.

kerrilyn , You may have NMH if you feel ill when it happens ,

I find I feel so ill I think I am dying , I can feel my heart slow right down and sometimes it feels like it stops.

Its strange how some of us have daily symptoms and others have it less often , I wonder why this would be ?

Just notised the replys again , I am so pleased because I dont feel so alone when I read your stories.

Other troubling symptoms I get daily are ...

palpatations and difficulty walking straight without feeling off balanced and dizzy,

Maybe this is the lack of blood to the brain.

Do any of you manage to work ? I can not work due to all these symptoms , it has certainly changed my life.

I have had these for 7 years , mine feel extream at times .

However today we walked the dog and whilst out I notised that when I had them I went really dizzy.

I have had dizziness for along time but never made the connection. It feels like my breath gets taken away. I feel it in my throat.

My ECG came back normal , but Im not totally convinced.

Is it possible to have a normal ecg yet have a problem ?

sounds fab ! can you actually buy one ?

when talking to people , I suddenly feel really really dizzy . I can be sitting or standing.

I think it might be NMH , it feels like it but I dont pass out.

can I stop this happening ?