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nsirois

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Everything posted by nsirois

  1. Thanks for your input. I don't have a BP cuff at home, but have noticed that my HR has increased lately. I too, thought the fullness was from a lack of communication between nerves and muscles, but I have also read that it could be secondary to a constriction of the carotids. I will mention it to my MD when I see him again in the near future. Since, I just had a baby, I am not on any meds which, I am sure, is contributing to the rise and increased intensity of my symptoms! The whooshing and pressure are the worst! Thanks again for sharing. It truly makes a difference knowing that I am not alone in this-although I wish we all could feel better:) All the best!!!
  2. I was dx with POTS last year with a questionable secondary dx of hypermobility syndrome (EDS??). I have fleeting whooshing, tremoring, and extreme pressure in my ears and neck. It's truly debilitating!! I had a baby 9 weeks ago and it has magnified since giving birth. Not sure if it's b/c of the decreased blood volume. It worries me. It can't be good to have that much pressure in your head!! I had a cranial angiogram to rule out a AVM in 2007, which thankfully, was negative. There is also accompanying fullness in my throat and pain in my ears. Any thoughts? Does anyone else experience symptoms similar to this? Thanks so much!!!
  3. This is my first post, so forgive me if I am doing this completely wrong! I was recently (a few weeks ago) diagnosed with POTS and Hypermobility Syndrome. I have had twitches (medical term is fasiculations) in my legs following exercise since college-which was 15 years ago. It is just a sign that your body is working hard to regulate itself. People with neuromuscualr disease often have this, but people with other conditions can have this as a secondary response, ie vasoconstriction issues, autonomic dysfunction etc. Typically, it's more annoying than hazardous to one's health. I hope this helps:) Fellow twitcher
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