Maisie87

YES. When I've felt my worst, I felt like the room was spinning when I laid with my head turned one way. Strangely enough, when I turned my head the other way, it wasn't as bad. Weird.

Most of us have all sorts of kooky symptoms all the time. You get used to it after a while.

Amy

thanks*

Are you wanting it to lower your heart rate to make it easier to make it through the morning? I asked my doctor and he said it does in many people-- have you tried Beta blockers?

Maisie87

Congrats!! Your dedication to getting healthy is paying off- whether your good spells come and go or remain- like the others say, you are obviously doing something right.

I understand being paranoid about "re-POTSing" yourself. ..but just take it very slow and enjoy it. Listen to your body- I'm sure you will get a feeling when it's time to rest and take a step back. One of the many lessons in POTS is patience. so happy you are getting some relief. keep us updated

I've just been diagnosed with POTS a month ago, but have had it for two years.

Does anybody experience the dizziness even while lying down perfectly still? Sometimes I'll be so dizzy but my blood pressure and heart rate are normal..and I'm not moving at all. Sound familiar? any feedback is greatly appreciated:)

this is kenand i was wondering if anybody has been to the mayo clinic in minnesota i went back to my neuroligst yesterday because i had got worse and she told me that i needed to go to the mayo clinic and see doctor low so how do you o about getting a refferal and is it a good place to go to get treatment.

Yes I just got back from MAYO in Minnesota. They are wonderful and very thorough. The doctors and nurses will spend more time with you than you are used to spending with doctors. The Mayo docs don't miss a thing, they don't skip steps or tests. If anyone has the answers it's them.

Good luck, I hope you can go and get some peace of mind. That's half the battle right. .?

Maisie87

Hey everyone,

I have POTS and got the flu shot a week ago. My symptoms got really severe by that evening, and have remained ever since.. did I "re-POTS" myself?? Have any of you had this reaction from a vaccine?

Thanks!