Sushi

How about using an umbrella to protect from the heat of the sun? I just bought a sun-reflective umbrella that I plan to use all summer because last summer's heat was really difficult.

Deucykub, Thanks for the information and the link. From what you said and reading the link, it sounds like it is the neurally mediated type of hypotension. This fits with my experience of finding that benzodiazapams help me with stamina and chest pain, (currently taking low-dose klonopin) as I've read that they are only helpful if the problem is neurally mediated. I also find that the speedy fall in BP usually comes after I've been standing for a few minutes and I've always had enough warning time to sit down. Symptoms have varied a great deal over the years--pretty functional periods and sometimes pretty non-functional--but I've only found a knowledgeable doctor whose known how to treat it in the last year. I've tried and not been able to tolerate florinof, midodrine, and clonodine, but the combo I'm taking now is working pretty well--I'm so grateful. Particularly the stattera and cymbalta stabilize my BP. Thanks again.

My doctor said that using weight machines or free weights can help to some degree. I am trying this, though can't manage more than half an hour, a couple of times a week. As it is good for gaining bone density as well, it seems a good plan.

Hi everyone, I have OI but do not have POTS--my heart rate only rises one or two beats when I stand instead of the "normal" 10 or so, but my BP drops and keeps slowly dropping till it goes into a sudden crash. I know the rise in heart rate in POTS patients seems to be an attempt to get the BP to stop falling. Does anyone know what kind of strange compensation the body makes to try to stop the BP falling, if you don't have POTS? Thanks.

After a hurricane knocked out our elevator for over a year I had to climb to the 5th floor with groceries, building repair supplies--everything! I had to stop and recover on each floor and I think this experience brought on months of heavy duty symptoms. Whew!

Elegiamore, Sorry to hear about this problem--it is so hard to figure out what causes what! I am about to buy compression hose and I wondered what level of compression you used? I have never tried them and I have read that 30-40 might be good, but that might be so uncomfortable I wouldn't wear them. Hope you figure out how to deal with this problem. I too have fibromyalgia and some of my dysautonomia meds have helped the fibro a lot. I am now able to go back to exercise, but do have to start slowly.