dizzy

Congratulations! What a relief!

I was wondering what state you are in?

Has anyone in Ohio had much luck getting approved?

I am at the point of going to court and was told it would take up to a year to get a court date.

EDS is ehlers danlos syndrome. It is a genetic problem that causes dysfunction of the collagen in the body. I was diagnosed with type III also called joint hypermobility syndrome ( my joints overextend without any pain).

The collagen problem causes the blood vessels to be weak and over strech. When you stand up your blood vessels should constrict to circulate the blood. My blood vessels are too week and I get blood pooling and low blood pressure - dizzyness, etc. The blood vessels cannot overcome the force of gravity pulling the blood down.

Likewise, if I hold my hand up the air - my hand turns white and cold because all the blood runs right out.

www.ednf.org ehlers danlos national foundation

www.ceda.ca Canadian ehlers danlos association

I am still learning about EDS. If someone wants to add more please do so.

It sounds like you have blood pooling. I get this in my feet - really bad after a hot shower or standing too long in the summer heat. My feet turn really red and hot and hurt. Mine is attributed to EDS.

check out this site. http://wonderofitall.com/

It has some beautiful pictures and inscriptions. It takes a little while to load but it is very beautiful. It has music too.

Have a good day everyone!

Susan

Spent most of my life in southern Ohio - not far from a uranium enrichment plant. Most of my family has POTS symptoms too - through my fathers side.