Michelle Sawicki

Hi Nichole,

It sounds like proamatine is raising your blood pressure, which is the objective. Do you feel better?

Here is an article discussing the new blood pressure guidelines:

http://12.42.224.153/HealthNews/Reuters/Ne...y0514200323.htm

Your doctor probably has an idea of where he wants you to be -blood pressure wise-, so ask him about continuing salt the next time you see him.

Hope you are feeling better!

Michelle

Hi Lisa,

I take 12.5 mg Toprol (beta blocker). I have tried Florinef. Unfortunately it actually increased my symptoms. I have tried Midodrine as well and didn't find it to be especially helpful. It made me very tired. Some people find Florinef and/or Midodrine to work great, but I wasn't one of those people.

I did take Midodrine and Toprol together. Midodrine constricts blood vessels while Toprol relaxes them, so that is probably why your doctor did not want to prescribe Toprol with Midodrine.

Hopefully you'll find something that works well soon.

Michelle

Thanks for moving one of the posts over. I know some of you put a lot of time into your posts -especially the ones that told your story- and I'd hate to see them get lost. So feel free to copy and paste them into the new forum. We will keep the old forum up for another week or so for those who want to move their posts over.

You do have a point about some people being symptomatic all their lives and doctors just not picking up on it. I do think this is the case with a good number of people. Others, such as myself, seem to have a genetic predisposition and then symptoms are tiggered later in life. I got severely ill with POTS all in one day. For me, I think I also have an autoimmune component to my illness, as I've had a positive ANA and I never get sick anymore...not even with just a simple cold.

Michelle