Maggy Posted September 15, 2007 Report Share Posted September 15, 2007 Hi everyone, I am stuck in a dilemma and don't know what to do.I am writing this to find out from people who are struggling with disabling symptoms throughout every day life the same as me.I have been prescribed Lyrica and have been taking it for about ten days.My life before lyrica was spent lying flat most days ,constantly in severe pain and if i did go out i was in a wheelchair and i have to have a carer full time, so i felt like i have lost a lot of independence and constantly needed someone when bathing so life hasn't been too great just latly.Anyway since taking lyrica that has changed considerably for a short time during the day but the consequenses of taking it are not that good.Sorry sever brain fog at the minute and hands shaking please excuse the spelling and rambling on..I will try and get my point across.When i Take lyrica within an hour i am pain free!! i have energy!! i really can't keep still or if i do my body will explode!!not nice... so for about four hours solid i can get up speeding aroun. great you say whats wrong with that?Well the body isnt able to keep up with this and whilst taking it heart rate and blood pressure is really high and after 5 hours it starts wearing off then the blood pressure drops really low so that if i raise my head i pass out and the pain is a lot worse in my body from doing too much.Non POTS people are telling me to come off it as the short the side effects are too dangerous.Ifeel that at least for a few hours of feeling like a healthy person again its worth taking a risk. What would you do?Sorry about the rambling i am benifiting from Lyrica and struggling to sit still long enough to write>Thanks for any advice.Ill just RUN off now and hoover ! ill be back in about four hours when im lying on sofa not able to sit up.Thanks Maggy. Quote Link to comment Share on other sites More sharing options...
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