blackdog Posted August 24, 2007 Report Share Posted August 24, 2007 When my son was in hospital last time, his gastroenterologist was trying to sort out some absorption issues to do with Mitch's J tube and decided to do a CT scan. This was about the one millionth test he's had, so everyone was very surprised when it showed a 2cm lump near his adrenal gland. He suddenly became very symptomatic 18 months ago following a sympathectomy for knee pain and has been bed- ridden all this time.His dr's are now testing for phaeochromocytoma and even though the 1st round of urine catecholamine levels were normal and had just small increased levels of gastrin and cortisol, they still are going to do a MRI and MIBG scans. We are still waiting on plasma results.I?m only guessing, but they must feel the CT findings and the symptoms warrant serious investigating.His symptoms just don?t seem to ?fit ?anywhere. His Neurologist describes him non classifiable and so far, no medication has made the slightest improvement, so we are welcoming any light shed on this.He has just turned 20 and missing out on so much! I?m interested to know if anybody else has had a similar experience. Thanks. Quote Link to comment Share on other sites More sharing options...
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