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I Definitely Have Chiari I Malformation

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My neurologist appointment was pretty much a bust. But he did confirm that I do have Chiari I Malformation. He told me it doesn't mean anything, it won't affect anything.

??? Why is it diagnosed if it causes no problems? I am so confused.

Can someone lend me some insight on this? I would surely appreciate it.



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I don't want to be mean or anything - but I was told that some neurologists can diagnose a Chiari I malformation on almost any MRI. It's commonly diagnosed only when the doc is looking for it. I believe that a chairi malformation is when the brain herniates through the skull, but there are usually no symptoms associated with it. A good link is http://www.ninds.nih.gov/disorders/chiari/chiari.htm. They are mostly benign, and are found by accident generally. It's a very common problem in people with Ehlers Danlos. The only treatment for it, if it is very severe and causing symptoms is surgery, which we, in general, don't handle well. Best of luck to you.


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