ann35016 Posted January 11, 2007 Report Share Posted January 11, 2007 Hi Everyone,I just recently was dx with Pots. This was mainly because of the ttt. I also have a sis with pots. I am still not 100% positive that this is what I have. Unlike my sister,I never have a rapid heartbeat, only skipped beats, or pvcs. I went to the dr when I started having near fainting / dizziness. My blood pressure has always measured normal and my heart rate is normal(never too high or low/ only palpitations.) I also had sob . Usually, when the palps were at their worst, I would get a really , really hot face. It feels like a blistering sunburn. It is not a rash. Now I get a flushed face even when I am not having palps.(I dont get a sweaty flush, i get a dry flush) I am on beta blockers and they really help the pvcs. The palpitaitons are better, but I still get really horrible facial flushing most days. (especially at night) I have been given 24 hr urine tests that ruled out catecholamines or metas as well as the 5Hiaa test for carcinoid syndrome . All negative.In additon, by dr gave me an ANA tests. The first test was a low pos. They did much more extensive bloodwork which was sent to mayo and it all came back negative. I have been checked for female hormones and have had 3 different types of thyroid tests- everything has come back normal. My cbc was normal and the cardiologist( I was admitted to the hospital when the palps started) did and echo , stress tests(nuclear) and basic metabolic panel. All also normal. He dx me with benign pvcs. Another dr at the mvp/ autonomic disorders center later dx me with pots.It has gone from slightly annoying to something that keeps me up at night and makes me very uncomfortable. It doesnt feel like I am hot . It feels like my face has been chemically burned. As a matter of fact, i had a tca facial peel(medium peel) several years ago. It feels a lot like that, except no stinging, more burning. I usually put a wet cold washcloth on my face. It can last anywhere form an hour to most of the night. It also affects me in the daytime.I am also having some visual disturbances (strange sensations,but good focus) ,stabbing pain on my head and a strange sleep problem . I just am curious to see if anyone here is having burning /flushing of the face. I feel like I either have something other than pots, or something in addition to it. I know there is a whole range of different symptoms for different people, but even the doc said that I might need to see a neuro over the other problems. any input is appreciated. Thanks Quote Link to comment Share on other sites More sharing options...
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