BallroomA Posted September 4, 2006 Report Share Posted September 4, 2006 Ok I know alot of us get this but wondering if any of you noticed it worse around certain times of the year??? Its been getting cold up here at nights and I am finding when I wake up in the morning or come in from outside I am having the pre-fainting spells? You know the stars in the eyes, spinning sensation, tachy attacks, with the numbness starting to shoot through your body. Already I am in sweaters to try to keep myself warm..but do any of you find you get worse in the cold months? Also what do you find helps? Thanks so much Quote Link to comment Share on other sites More sharing options...
corina Posted September 5, 2006 Report Share Posted September 5, 2006 ballroom,i'm always cold during winter (and autumn, spring and a cold summer ). when i started mestinon, i found out that it kept me warmer so that i got a little less symptomatic.i always dress warm (unless the temp is VERY high), usually in layers so that i can take something off when i need to.hope this helps a bit,corina Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted September 5, 2006 Report Share Posted September 5, 2006 I actually am worse in the summer, but I live in Arizona.But I get cold easily! I like the temp in my house at 78. I find it hard to cool my body down when hot and warm it up when cold.Amber Quote Link to comment Share on other sites More sharing options...
ode_to_fantasy Posted September 6, 2006 Report Share Posted September 6, 2006 It's strange, because I'm exactly the opposite. I pass out almost constantly when the temperature is hot, so I keep my house at 68? constantly...but I live in Florida, so maybe I get that way in extremes, but I don't know it, because it's never cold here. hehe. My friends always complain that my house is cold, but I usually have to have fans on, and take cold showers too! I wonder if it's just the extremes...? Quote Link to comment Share on other sites More sharing options...
kmpower Posted September 6, 2006 Report Share Posted September 6, 2006 Hi. For me it is not so much the temperature change in the cooler months which aggravates the symptoms, but the barometric drops. Less air pressure = less oxygen to the brain. I am more lightheaded with all the fun stuff that goes with it as the pressure drops.It probably doesn't apply to all of us. But I found a website which lets me chart the barometric pressure for my area and I watch it, comparing it to my various symptoms.I hope as the weather changes, you figure it out and get some control. It sounds miserable.OLL Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted September 17, 2006 Report Share Posted September 17, 2006 okay, if it is hot i pass out--- no stopping it. but i stay cold most of the time. my hands and feet are always cold! last winter i was in dc, one of the few times i had seen snow and by far the most i had ever seen! i know that is sad to those of you up north. i passed out some in the cold weather but most of the time i was in my wheelchair. i guess i still pass out no matter what the temperature is but it is much quicker when the temps are hot. i hate being cold though. it hurts my bones and i shake a lot. and yet i am going to be moving even farther north than dc in a few months. in the middle of winter! lots and lots of snow! (sigh). so in a few months i will respond to this one again and let you know... if i remember... which i probably will just because it is a big concern for me. i don't know what to expect exactly. dionna Quote Link to comment Share on other sites More sharing options...
Hoobaid Posted September 18, 2006 Report Share Posted September 18, 2006 The heat makes it so hard for me! Having both POTS and Lupus - SLE I stay out of the heat and sun almost all of the time. When I do go to the store, etc... my husband drives me and drops me at the door and I get an electric cart or he brings the wheel chair. In the cooler months I can manage some by myself. The house AC is kept at 72 and I always have a fan on me. I live in Florida, near Clearwater and Tampa, so it is HOT 75% of the time.Lori Quote Link to comment Share on other sites More sharing options...
ode_to_fantasy Posted September 18, 2006 Report Share Posted September 18, 2006 The heat makes it so hard for me! Having both POTS and Lupus - SLE I stay out of the heat and sun almost all of the time. When I do go to the store, etc... my husband drives me and drops me at the door and I get an electric cart or he brings the wheel chair. In the cooler months I can manage some by myself. The house AC is kept at 72 and I always have a fan on me. I live in Florida, near Clearwater and Tampa, so it is HOT 75% of the time.LoriHey Lori, I'm actually looking for a specialist....what Dr. do you use? I live in Gainesville, but I'd be willing to make the trip for someone who knows what they're doing... Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted September 18, 2006 Report Share Posted September 18, 2006 I'm hot all the time. I still have my air con on! Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted September 18, 2006 Report Share Posted September 18, 2006 I also do better in the cool months. Heat... Makes me SO much worse! Quote Link to comment Share on other sites More sharing options...
Hoobaid Posted September 18, 2006 Report Share Posted September 18, 2006 Hey Lori, I'm actually looking for a specialist....what Dr. do you use? I live in Gainesville, but I'd be willing to make the trip for someone who knows what they're doing...ode_to_fantasyI have a cardio named Marilyn Kuo. She is part of the Clearwater Cardio. She is great but I still am trying new things with her. Have you tried Shands? I saw a few docs there about my Lupus...I wasn't too happy with them but maybe they have a good Cardio.Good Luck!Lori Quote Link to comment Share on other sites More sharing options...
ode_to_fantasy Posted September 18, 2006 Report Share Posted September 18, 2006 I have a cardio named Marilyn Kuo. She is part of the Clearwater Cardio. She is great but I still am trying new things with her. Have you tried Shands? I saw a few docs there about my Lupus...I wasn't too happy with them but maybe they have a good Cardio.Good Luck!LoriI actually go to Shands, and my Cardiologist is awesome, but he recently told me that he doesn't know what else to do. Quote Link to comment Share on other sites More sharing options...
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