Excellent Resource By Dr. Goldstein

[goldicedance]

If you do not know about this report, you might find it quite informative: The NDRF Handbook for Patients with Dysautonomias" by Goldstein & Smith. It can be accessed at:

http://www.ndrf.org/NDRFHandbook.htm

This book helps provide some answers to many of our questions.

I submitted it to justify why my employer (the fed govt.) should approve my request for waiver of advanced sick leave due to retirement because of disability. The first time I sought this waiver the work doctor disallowed my request. I then submitted not only additional medical evidence on my condition but also a number of monographs and general information resources. My request was then approved.

I also included Dr. Grubb's most recent article as well as Dr. Low's study on quality of life for people with POTS.

Lois

[corina]

thanks lois, i'm going to print the articles!

corina

[yikespanic]

Thank you so much for posting this link, I just spent my whole morning reading this. It was so informative and reading about some of the things I had been experiencing and the explainaions was comforting.

Thanks

Kim