deeplyset Posted March 31, 2006 Report Share Posted March 31, 2006 I went to the Mayo Clinic and saw a Antonomic Specialist in Dec. He gave me a few very practical suggestons to deal with the POTS that has immensely helped me so I thought I would pass them along.I know that may be elementary for some but they also my be revolutary to others (as they were to me).He showed me a technique while standing to cross your legs (like as if you had to go to the bathroom) and squeeze your thighs.This pushing your blood pooling in your thigh muscles and legs up into your heart and helps your heart not have to work so hard. He tested my heart rate and blood pressure while I was stand and did this and my immediately dropped by 20 bpm. It also deceased my dizziness and nausea.It has increase my ability to stand. And has help me get through quite a few tests already.Next, to told me that instead of drinking Gaterade (as suggested by the Mayo Clinic in Scottsdale) that I should drink Pedialite (a baby drink for dehydration) because it is higher is sodium and lower in sugar than Gaterade is... It found that it is like an Energy drink for me and much for effective then the Gaterade was.Next, he pointed about that a lot of my symptoms were being exagerated by two factors #1 mirgraines and #2 hyperventilation. In identify the difference of what was what I would be able to identify what I could control better and what I couldn't.I have felt very helpless and "victimized" with my whole POTS experience. Knowing there were factors I could control and things that I could contributing to feeling better has help me feel way better.He said the one of the biggest problems POTS patients face as a whole was hyperventilation. It agggravates their symptoms. He pointed out to me that not CONTROLLING and really focusing on steading my breathing was causing me to #1 panic, #2 get weak really fast, #3 pass out quicker, #4 light headness, and other things like confusion and disorented because of the lack of oxygen. Just focusing on breathing steadily has been really REALLY hard but has help me feel better and not get nearly as bad off as I use too.I never realized before that my mirgaines were playing such a big role me me feel so rotten. He pointed out that a lot of my weakness, and the vision disturness, speech disturness, the paralization and some other symptoms were the mirgaines. I then later was diagnosed with hemiplegic migraines (headaches associated with paralasis).Anyway. I don't know if any of this will help anyone else but I hope so because it sure helped me. Quote Link to comment Share on other sites More sharing options...
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