deeplyset Posted March 31, 2006 Report Share Posted March 31, 2006 I know this may sound like a dumb question but I want to know...I was already diagnosed with P.O.T.S., had more than one positive Tilt table test. But the last couple times that did standing and heart rate/blood pressure tests on me my heart rate did not do what it normally does... IE the classic POTS rapid increase within 2-10 to over 120/150 bpm. I was having really good days on both the tests but I thought that wouldn't matter?? And I have been able to do more? (Right I'm down again now...) but I'm really puzzled by this...Why was I able to make it standing the full 10 minutes that time? And my heart only got up to like 98 to 115. And at others I can't.I'm just so confused. I'm frustrated. Does anyone else experience this? Do you still have POTS? How do you know if you "get rid of it"? Does it ever go away?I feel so confused... Quote Link to comment Share on other sites More sharing options...
Be Still Posted March 31, 2006 Report Share Posted March 31, 2006 All I know is POTS is so much more than tachy. I have many days where my standing HR is in the 100-115 range. I still feel bad.Are you on any meds that would lower your HR?'Lowered HR' is not equal to 'Feel Good' (dang, won't let me do the cool 'not equal' sign.)'Lowered HR' is not equal to 'No POTS'Confusion=POTS Quote Link to comment Share on other sites More sharing options...
morgan617 Posted March 31, 2006 Report Share Posted March 31, 2006 My bp and heart rate can be fine and I am still miserable. I can have a bp of 170/100 and feel okay. I will never figure this disease out. There's just so much more involved than your pulse and bp. Sorry, can't help more, but that's the way it is. morgan Quote Link to comment Share on other sites More sharing options...
futurehope Posted March 31, 2006 Report Share Posted March 31, 2006 If it makes you feel any better, my neuro always takes my BP while sitting in his office and then during intervals adding to 10 minutes.When just looking at heartrate, it would seem (from a few of my visits) that I've improved. Last visit I regressed and the doctor noticed that my heartrate went up and he was confused. I told him I was having a "bad" day.Conclusion: It is so much more than the 30 BPM increment. Numbers can be fine. I can be miserable. Quote Link to comment Share on other sites More sharing options...
Meliss446 Posted April 1, 2006 Report Share Posted April 1, 2006 Like the others already said, it is so much more than a HR increase, and you can have bad days and good days that do matter in terms of HR. Like the other day I had a resting HR of 90, and today I can't keep it under 110 lying down and 130 standing up. I have found that there are so many variables that affect how you are feeling and how your body is responding that there is a lot of variance from day to day or test to test. There are some days I could never make it 10 minutes, some days it is not a problem. One major factor that I have found is hydration. If you are dehydrated, the symptoms of POTS will probably be much more noticeable or even exaggerated. But if you are well hydrated, you might have a little lower HR or be able to stand up longer. Like I said, there are just a lot of variables. My doctor just calls me complicated, because I am all over the place with things. I have had this for 4 years, and still haven't figured it out. But most doctors have told me that POTS does tend to wax and wane, and varies from day to day. Quote Link to comment Share on other sites More sharing options...
Ernie Posted April 1, 2006 Report Share Posted April 1, 2006 Hi,I agree with the others that you may have been having a good day. Quote Link to comment Share on other sites More sharing options...
Be Still Posted April 1, 2006 Report Share Posted April 1, 2006 Melissa, I totally agree with you. Like a broken record (oops! dating myself) like a CD with a skip in it, I keep saying over and over, "There are so many variables!"What you ateWhat you didn't eatHydrationTrying new medsOld meds not playing niceForgot medsThrew up medsRan out of medsCan't afford medsGood dayBad daySo-so dayIt?s daytime?Barometric pressureHumidityCold coming onCycle stagesOverdid it yesterdayHusband looked at you wrongWedding to go toSSDI forms in the mailHair falling outKids are sickHad sexDidn't have sexToo much pepperIC acting upDidn't sleepSlept too muchBaby has foreign material coming out of mouthNew wrinkle/gray hairBlack cat walked across pathDoctor appointmentDoctor appointment canceledNo one's answering my postNeed wheelchairParty next doorHolidaysKid in trouble at schoolParent is sickSkunk in garageBiopsy next weekDoctor hasn't called backER disasterDropped cell phone in toilet/lake (that's personal!)Body haywire for no good reason whatsoeverHusband left toilet seat upStrange bruisesPregnancyFull moonCar breaks downPillow is acting funnyCan?t find important paper/objectTherapist keeps yawningtoo many variables . . . Quote Link to comment Share on other sites More sharing options...
Guest CyberPixie Posted April 1, 2006 Report Share Posted April 1, 2006 Husband looked at you wrongHad sexTherapist keeps yawningtoo many variables . . .LMAO!!! You should write a book!What's sex?! ;0) Quote Link to comment Share on other sites More sharing options...
deeplyset Posted April 1, 2006 Author Report Share Posted April 1, 2006 WOW...THANK YOU... I never really thought about it this way. And it so true. I just I'm so tired of not being validated by Docs and always questioned. It makes me question myself.I shouldn't do that. It helps to know you all are feeling and experiencing the same things. Thank you for your support and help.POTS is just so much so often, I often get overwhelmed and feel so misunderstood. Especially by the medically community. Thanks for being there. Rachel Quote Link to comment Share on other sites More sharing options...
persephone Posted April 2, 2006 Report Share Posted April 2, 2006 2 months ago I was riding a bike round Oxford; today I can hardly stand. Pots comes and goes- it appears to be cyclical for most people. Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted April 2, 2006 Report Share Posted April 2, 2006 I have to chime in agree here - I seem to have good spells and bad spells. I was being wheeled out of my classroom by the school nurse (I am /was a teacher) 2 months ago and couldn't function, and now I am working in the garden a few hours a day.A few years ago my heart rate was usually up around 145 when standing or triggered, now its usually between 100-130. My other symptoms cycle too, inlcuding GI stuff, that fuzzy headed feeling, and the shakes.I have to agree with Be Still - POTS = Confusion! Even for the doctors!Feel better soon Quote Link to comment Share on other sites More sharing options...
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