Dizzy Dame Posted January 31, 2006 Report Share Posted January 31, 2006 Hi all,As some of you may remember, I've been at Vanderbilt the past two weeks in the CRC. Today is the discharge day, and also the day I found out what exactly is going on with me. The diagnosis of POTS was confirmed. They also found that I have a low volume, but not low enough to explain all of my symptoms. I've been put on Midodrine 3x a day, and we will try a combination of propanalol and mestinon if the midodrine isn't working. Early in my stay, they drew to test for antibodies, and the test came back positive. I'm waiting right now to find out what this means, but it could mean that I have an autoimmune disorder causing the POTS.I was wondering if anyone has tested positive for the ACH receptor antibodies? These are the ones that came back positive. They are still waiting for the results of the methylhistamines, I'll keep you guys posted on that. So, all in all, Vanderbilt was extremely helpful. I learned volumes about my condition, and about the mechanics of all autonomic disorders. I'd reccomend the program to anyone who can handle going off thier medications. If any of you have specific questions about Vandy, feel free to PM me and I'll try to answer you. Cheers, Lauren Quote Link to comment Share on other sites More sharing options...
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