luckygoat3 Posted January 20, 2006 Report Share Posted January 20, 2006 Hi all,after seven years of thinking yes it takes that long,i have been questioning my dx of POTS/NCS/OI. When Dr. G did the TTT i passed it actually almost with flying colors, but the reason i was dx was of the symptoms. Now that i have been thinking what if this is lyme disease. Most of my unexplained symptoms aren't POTS/NCS/OI related but some are. My local doctor today said that in this area there isn't much, but i do have animals, live on a farm, and of course have been in the woods many of times. anyways, even if my test which he kinda refused the more accurate testing---he's doing a simple one and i think that will come back negitive...but we will see. i have never been on the standard treatments for dysautonomia, only an anti-drepressant. susie Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 20, 2006 Report Share Posted January 20, 2006 My understanding is that the TTT is considered the gold standard only b/c there really is no other better method of diagnosing POTS. However, it is possible to pass a TTT and have POTS, as POTS can vary in intensity and symptoms from day to day. I know for myself that there are days when I could "pass" a TTT, but yet am still symptomatic. Also, if you are on any meds when given the test, it is possible these could affect the results.As far as Lyme, I don't have any advice--I am not knowledgable enough. There are others on here who may be able to help.Katherine Quote Link to comment Share on other sites More sharing options...
Jenn202 Posted January 20, 2006 Report Share Posted January 20, 2006 Luckygoat - POTS is usually a problem brought on by something else.If you even suspect you have Lyme I would see a good LLMD asap....Lyme is what brought on my POTS.... Without antibiotic treatment for Lyme and coinfections I have no idea what state of health I would be in right now...Feel free to email me if you would like jljlc@sbcglobal.net Quote Link to comment Share on other sites More sharing options...
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